UK sources of information and / or support
This is a US site for this very rare form of cancer. The site is designed to be a portal to give access to informational pages, research, chat groups, email groups, and the support of members from around the world - including the UK.
Another US site for this very rare form of cancer. Includes FAQs and other information from lay people, based on their experiences. The associated support group has members worldwide, including the UK.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.