Adrenoleukodystrophy / Adrenomyeloneuropathy

This page has been archived. It has not been updated since 24/01/2012. External links and references may no longer work.

UK sources of information and / or support

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ALD Life

Support group for families affected by adrenoleukodystrophy and adrenomyeloneuropathy. Offers practical support and advice and raises funds for medical research.

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AMN EASIER is a support group for patients with adrenomyeloneuropathy, the adult manifestation of the same neurological genetic mutation that in young boys causes the disease adrenoleukodystrophy (ALD).

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The Myelin Project

They provide information and support 24 hours a day, 7 days a week. The support is provided by lay people that are also affected by these diseases and can relate to experiences and mixed emotions our members may go through. All support and information is offered free of charge.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

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