Non-UK Health Websites

Patient UK has information leaflets on a large number of diseases and illnesses, and an extensive directory of patient support and self help groups. In addition, our extensive web directory lists many other sites which provide information and support on specific illnesses and diseases. The following list is of non-UK comprehensive health information sites (mainly from the United States of America) with content aimed at the general public.

American Self-Help Group Clearinghouse

(US site) A keyword-searchable database of over 800 national, international, model and online self-help support groups for addictions, bereavement, health, mental health, disabilities, abuse, parenting, caregiver concerns and many other stressful life situations. Also lists local self-help clearinghouses worldwide, research studies, information on starting face-to-face and online groups, and a registry for persons interested in starting national or international self-help groups.

Family Doctor

Information on disease and illness from the American Academy of Family Physicians.

Genetic and Rare Conditions Site

(US site) From the University of Kansas Medical Center, provides lay advocacy and support groups, information on genetic conditions/birth defects for professionals, educators, and individuals, national and international organizations.


A gateway consumer health and human services information website from the US government.


Disease and health information website created in partnership with Harvard Medical School.

International Alliance of Patients' Organizations (IAPO)

(International site) The IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world. Their members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers.

Irish Medical Directory (IMD)

(Ireland) The IMD offers an unparalleled source of information about clinical services in Ireland.


Extensive site devoted to the health of children and teens.

Mayo Clinic Health Patient Care and Health Information

Health information from the Mayo Clinic, a nonprofit worldwide leader in medical care, research and education.


Medical information and support provided by a profitable private company which is funded through operating profits.


Part of the WebMD network, MedicineNet is an online, healthcare media publishing company.


The National Institutes of Health's website of information about diseases, conditions, and wellness issues.

(US site) Because of the rarity of rare diseases it is often hard if not impossible to locate others sharing the same experiences in order to network with information, support, encouragement and understanding. tries to offer help to those people too often left out of the mainstream health support networks.

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