Porphyria

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This page has been archived. It has not been updated since 15/12/2011. External links and references may no longer work.

UK sources of information and / or support

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Patient UK

Has an information leaflet on Porphyria

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British Porphyria Association

Provides information and support.

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Porphyria Cutanea Tarda (PCT)

Information from the British Association of Dermatologists.

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Congenital Erythropoietic Porphyria

Information from the British Association of Dermatologists.

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Porphyria

Information from the British Liver Trust.

(There is also a very good US site - Porphyria Foundation)


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

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