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UK sources of information and / or support

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UK Thalassaemia Society

Advice and support for people with thalassaemia.

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NHS Sickle Cell & Thalassaemia Screening Programme

The NHS Sickle & Thalassaemia Screening Programme has been set up to implement "effective and appropriate screening programmes for women and children including a new national linked antenatal and neonatal screening programme for haemoglobinopathy and sickle cell disease".

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Information from the Northern Primary Care Genetics Website which is primarily aimed at those working in primary care; however, they offer information in this area.

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Medicine Guide for Thalassaemia

Information from emc Medicine Guides.

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Health Talk Online

Database of Individual Patient Experiences is an Oxford-based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on screening for thalassaemia.

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Beta Thalassaemia

Information from BUPA.

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Information from NHS Choices - the government's patient information portal.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

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