2 years into PMR and Osteoporosis - review by the Rheumatologist.

Posted , 2 users are following.

Exactly 2 years ago PMR and severe OP were diagnosed. Treatment for PMR was Pred. 15mg. reducing. Treatment for OP was one year Forteo followed by one year Actonel. 

Results :

PMR - presently reducing very slowly from 4.0 to 3.5 and going well so far. In all, fairly uneventful. By Christmas I may be near 2.5 and may stay at that  for a period.

OP - Dexa scan showed 11% improvement in bone density. (T-score was -4.5 and is now -4.0, still very low.)

Recommendation by Rheumy -1)  continue slowly to reduct the Pred. - was impressed by Eileen's slow plan and how it worked so well for me!   

2) Resume Forteo for the second year, then back to Actonel for 3 years.

Comments by Rheummy:  again the differentiation between bone strength and bone density - and changes in bone that are only seen in it's microscopic architecture are making bone stronger and less likely to fracture. 

I asked if Forteo was not an available treatment, what would have been her second choice? She said Prolia for severe OP but that it's a much newer med. and can affect the immune system. She also added that Forteo is also used now in patient's with Chron's Disease and some other conditions I can't remember . . 

Next apt. in 4 months.

I may be boring some of you who heard some of the above before, but it's a summary for those who haven't.

J

 

1 like, 3 replies

3 Replies

  • Posted

    That sounds encouraging Juno.  I wasn't quite sure what you were saying but I THINK you were saying that if bone is more dense, then it's less likely to fracture?  Even if that's achieved with AA or similar?  Only questioning this because I thought there was some mention that denser bone wasn't necessarily bone less likely to fracture?  Am I understanding what you said correctly>
    • Posted

      Hi Chris, no what I think she meant was that even if density scores aren't the best after treatment, it doesn't mean that the bone hasn't become stronger (though microscopically evident only).  . . . .And therefore less likely to fracture. For example, if your bone is stronger and you fall, you are less likely to have a break.    J

       

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.