25 post ablation need help now.
Posted , 9 users are following.
25 year old physically active male.
I don't really wanna go into details, I tried this once I'll try it one last time.
- SVT, 230 BMP not AFIB and directed cause at to left atrum of the heart upper chamber.
Solution: Atenelol
Problem: Sucuidal feelings. So I move onto the next catagory on what I can do. I got an ablation.
Now this is unsuccessful, I have no idea what is going on but my heart is beating rapidly all the time I go online to have a look at this but the only thing I can find for people with fast heart rates after a ABLATION is AF ablation people, I'm also experiencing a hard pressure sensation that links down to my left shoulder down to underneath left my ribcage. Average heart rate 110 - 115 bmp rest, walking around 130, increasing low matience excerise 170-180, high matience exercise = pass out. Also I am noticing my SPO is dropping rapidly for some odd reason and then rising back up.
solution = Isoptin.
Problem: drops my blood pressure too much. No energy to do anything.
Additional solution : Valium.
Problems: I give up.
All I want is to be able to run around, drink coffee or alcohol and no more heavy palations this has been 3-4 months after the ablation. I feel like a chicken with it's head cut off.
additonal notes and tests I've had done.
- Stress test that triggered a heart rate of 199 on light exercise.
- A dye solution injection to see if there is a clot in my lung.
- Blood tests to check my troponin levels which are fine.
- It has been 3 to 4 months since the ablation.
- I have tried ativian to see if was anxiety related wish I didn't heart rate sky rocketed like crazy after taking it.
I've I have to live like this for the rest of my life I'm not sure I can to be honest with you. I need to be active I can't just be still I need to move! And everytime somebody saids it's my anxiety I will flip out because I'm tired of hearing that excuse it's like the one thing people will throw at you when they don't know what else to do.
0 likes, 15 replies
Alaskan Matthew008
Posted
Anxiety won't cause a pulse that high. I've never heard of it causing a change from sinus rythym to arrythmia either.
Sometimes a second ablation will be successful. I would consult with a cardiologist about this, and probably go to someone else for the procedure next time.
I would definitely seek the most experienced doc available, and try it again. The latest technology freezes heart tissue, rather than burning it.
Matthew008 Alaskan
Posted
You have no idea how many times I've nearly lost the plot at the ambulence offices or doctors telling me that its an anxiety related incident.
It's frustrating.
I think I'm just going to find a different cardiologist get him to listen to story so I don't seem so whack. It's just have to take valium because its the only thing that keeps me sane without the lack of physical activity and because I'm so damn young everybody is like 'DEAL WITH IT'.
mary90 Matthew008
Posted
So sorry to hear about the terrible time you've been having Matthew, I can understand your feelings of frustration when nothing seems to be working.
I had ab ablation myself 3 months ago and, although I've had a few runs of SVT since they have been fairly minor compared to what they were before - unsure whether this means the ablation was successful or not really.
?The only thing I can suggest is to keep on nagging the doctors to do everything possible to find out the cause of your problem, you certainly can't be expected to live with this at such a young age. Don't know where you live or if you are using the NHS. If you are having to pay for this yourself or on insurance it must be an added worry.
My thoughts are with you and I hope you get to the bottom of all this very soon and feel much better.
Taje care!
Matthew008 mary90
Posted
Yeah I get that but AF ablations and regular ablations are in a complete left and right field on how they are treated AF ablations tend to take more than one gone usually.
I've never been in an AFIB arythmina.
Thank you for your post it's just when it comes down to AFIB and regular S.V.T they just tend to be in a different field.
Lolasmom Matthew008
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Can you not go back to your specialist and go through everything with him?
Matthew008 Lolasmom
Posted
ruth64390 Matthew008
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Hello Mathew
I'm a 28yr old female who works in the medical field and believe me when I say I understand what you are going through. Is no fun when you are young and all of a sudden your life comes to a halt. When I started having my symptoms ie. Dizziness, Shortness of breath etc I was put in a 24 hr halter monitor and the findings was "SVT" I was then referred to a Cardiologyst. My Cardiologyst evaluated me, Did a Stress Test and Echo and the findings where all Normal except my heart rate when up real high with very little activity. It was then that my Cardiologyst explained to me that what I have is not SVT but (IST) Inappropriate sinus tachycardia. IST is when your heart beats faster than it should even at rest. My heart is also always in the 100's or more. I was then referred to a Electrophysiologist who also evaluated me and reassured me that although my heart is constantly running a marathon it is over all healthy and in good shape. He also explained that for this specific condition ablation wont work. I'm not saying you have IST but maybe you should ask your Doctor about it and see if maybe you have been miss diagnosed like I was at first. IST and SVT are very easily mistaken. I would also suggest that if you get a new Dr to get yourself a Electrophysiologist. They specialize in heart rhythm issues which is the origin of SVT and IST. It gets better though. My providers pescribed me beta blockers but because of the side effects I chose not to take them. Thankfully my symptoms are not so bothersome that I can carry on without them. But it was definitely a journey. The key is to try and stay positive and believe that above all your heart is otherwise healthy and that this wont cause you death. With these conditions a lot of the time is a trial error journey. At first I fell into a depression I lost 10lbs in 5 short days. I was constantly crying and became obsessed with checking my pulse every minute of the day. It was bad. But I now have a different outlook. I stay positive and active as best I can. I challenge myself each day with new goals. I travel, run, do sports. I ride roller-coaster and stay young. Don't let this condition stop you from living. You have so much ahead of you and you are not alone in this journey. I have IST and am currently in no medications. My heart is always running a marathon but when you get to know your own body and its limits things start to get better. I now live as if I don't have a thing wrong with me. I take care of myself don't get me wrong and do my follow ups but I just live each day, day by day. I stay positive and trusting that God has my back and that everything will be alright. Best of luck to you. Stay Strong! Stay Positive 😊😄💪?
Matthew008 ruth64390
Posted
It was an STV. There sympatic event with anything that is an SVT, meaning that it would be in the 80-90 for whatever reason and they spike up to 230 bmp on quick esclation, no slow esculation. There is a jump sensation in the chest and get short of breath and you can be doing nothing, the only way out of it pretend like you're on the toliet or try rubbing your veins which did work for me but I was constantly tired of having to battle it out on a day-to-day baises. Not to mention on the E.K.G machines already would pick up the false eletrical signals.
My probem is now is that I've had the ablation and now my heart is going fast all the time. This is freaking me out, inherently it isn't killing me but I HAVE a high levels of testorine running through me. I need to be doing things, I try be doing things. My father honestly who does suffer with the same thing IST does take Ispotin but I've never inherinted that trait before. It doesn't make sense.
I can't have the thing you call hope because I don't know if I can believe in hope but only listen to what my body is telling me.
I'm willing to accept the fact that I might be doomed and this will never get resolved but I'm trying to gravitate to my reality of my situation.
You're the first person who acutally realizes how I feel about beta-blockers and the emotional implications of what it means for me to move and to continue moving with a fast heart rate but it sucks being house bound it ain't healthy on the mind either. If I have my heart go too fast and decide to pass out and I'm driving because somebody else has short-cutted me or I freak out I could end up taking a life accidently, so I choose not to drive. Hey I can still walk and go outside and stuff and what not right? Yeah I can but if I pass out people are going to call an ambulence at the sign of somebody fainting, sure I may wake up but I'm going to have to... somehow deal with people trying to be empathic in a situation which is just another annoyance.
A lot of times during the night I do wish I'd just pass away in my sleep because it just seems to be an endless cycle. I have a problem, find a solution that creates another problem then more problems and more problems so I'm scared of solving problems now because of even more problems. But thank you for your post empathically understanding where I am coming from.
sherry08966 Matthew008
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Matthew008 sherry08966
Posted
I wish I had a parent like you. My dad scoffs at me. Doesn't care if I faint. I'll try I guess.
sherry08966 Matthew008
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Matthew, I am sorry to hear that about your Dad! What you have is nothing to scoff at! Why don't you at least ask your Dr. If he thinks SOTALOL would help you? I feel so sad for you. No parent should scoff about the condition you are in. May God bless you Matthew008. I hope you get some help with this situation! Sherry
kashifmcs Matthew008
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Matthew008 kashifmcs
Posted
My Cardologist said I would only need a pacemaker during the procedure if they burnt a part of my heart I think they said it was the middle bit that would reduce all function to heart therefor I would be dying and they'd have to insert a pacemaker. I don't know if having one would help I'm 25, so maybe I need to have a heart attack first before they'd even consider something like that.
brandy2222 Matthew008
Posted
Hi Matthew008
I went through something similar except my heart rate issues started directly after a long SVT episode that took my heart rate to 248bpm. Prior to this episode I could go all day without stopping but right after the SVT episode could not cross the room without my heart rate jumping to 170bpm. I did a treadmill stress test prior to the ablation and within 2 minutes on the treadmill the heart rate rose to 170bpm. The cardiologist couldn't explain except it except to say that the heart rhythm was regular but rising too fast. A simple walk would take it to about 125bpm. Post ablation I had same high heart rate with exercise but no more true SVT episodes.
At first the Cardizem controlled the heart rate pretty well but then I had to get an increased dosage when the issues recurred. The issue became dramatically worse this year with my heart rate going up to 150bpm with a simple walk. The higher heart rate came with frequent crushing chest pain running from my left shoulder all the way through my entire chest. Sometimes it was so painful I would break down and cry. Now I'm on Cardizem as well as Ivabradine. The Ivabradine cut the heart rate down to close to a normal level so life is manageable and I can be fairly active. My heart rate still gets to about 100bpm with a short brisk walk but that's a lot more manageable than 150bpm.
The electrophysiologist diagnosed me with autonomic dysfunction and said that the autonomic system was responding inappropriately to adrenaline. He couldn't explain why it started right after the last SVT episode. I thought that I had IST (form of SVT) which has very similar symptoms but he didn't think so. He also ruled out POTS with a tilt table test.
My advice would be to get back to an electrophysiologist and get more tests done to help determine what is causing your heart rate issues. It is very debilitating and discouraging to deal with. If your heart rate remains regular the fast rate is not damaging or dangerous per my electrophysiologist, but is a serious quality of life issue. However for you passing out can be dangerous because a fall can cause real damage.
You need a specialist because others often default to anxiety as an explanation because they can't explain it otherwise. I heard that anxiety explanation so many times before I was diagnosed with SVT that I wouldn't even go to the ER when I was having an episode. I only went during my last SVT episode because I was at work and my manager insisted I go to the ER immediately.
See if you can discuss ivabradine with your doctor and whether it would be appropriate for you. It made a huge difference for me as it doesn't depress my blood pressure but it does keep my heart rate close to normal. I no longer feel so fatigued mentally and physically from erratic heart rate.
Good luck.
sherry08966 brandy2222
Posted
Brandy, Thank-You so much for helping Matthew! Like you said it is a serious condition.Nothing to fool around with. He is a very sweet person. I am praying for him too. Our son had this condition, and it was a constant worry. I wonder who his Dr. is? He probably doesn't live here where I do. You are definitely right . He should see another electrophysiologist for a second opinion. . May God bless you both. That condition is very scary!