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80 degrees khyphosis

Posted , 8 users are following.

nick94844
nick94844

First of all sorry for my poor english... I'm not from the UK or US so...

I'm 16.11 years old and I have pretty severe khyphosis (my last x ray- 10 months ago was 75 degrees, but I think it grown to 80-85)

The specialist told me (10 months ago) that they usually do the surgery only to 90+ degrees.

There are days that I'm having huge pain doing regular activities like going to school with my backpack or just bending over to pick something from the floor...

But I have to admit that the thing that boders me the most is the look of it, it is gross ! 

I dont want to take my shirt off in public so people wont see...

In the past few months I seriously started thinking on having a surgery, and I have some questions to the guys here who had it-

1. My head is really leaning forward, i guess its because of the khyphosis... If i'll have the surgery will it be better and less noticable ?

2. If I look at my back in the miror, Its seems that it is bigger from one side of the body than the other,does it makes any sense ?

3. I have hyper lordosis in addition to the khyphosis, I guess that in the surgery they will fix only the khyphotic part of the back ? 

4. How much centimeters did the surgery added to you ?

Thanks and again sorry for the english...

 

0 likes, 12 replies

12 Replies

  • Jay91157
    Jay91157 nick94844

    Posted

    Hi Nick, I had scoliosis so cannot comment on some of your concerns. I was operated on at age of 57 curve top 71 bottom 48. Over the years the spind stiffened so they could not straighten me fully. I grew 1.27 centimeters, not  a lot My curve is still 38 degrees top and almost straight bottom.  The hump is normally bigger one side to the other. But even my curve reduction is amazing.

    ​Suregery is tough especialy in the early days, but if it is what you want then go for it especially if they only do to 90 +, time is running out for you. However recovery is better at your age than mine. The worse the curve progresses you then have the potential of if pressing on organs and then this will lead to another set of health issuse.

    I hope this helps a little to your decision.

    ​Best Wishes on whatever you decide.

    • Normagray02
      Normagray02 Jay91157

      Posted

      I wish I could get my pain doctor to tell me the curvature of my spine but I'm not getting anywhere from him and I'm deformed mostly upper back More to the right than left! Surgeons turned me down and i don't know the answer to why but I'm 53 and have had this since 2010 and getting much worse and can't do much of anything about it uuuuug any suggestions?

    • Jay91157
      Jay91157 Normagray02

      Posted

      I would go back to your doctor and ask to see the notes the surgeons have written as to why they have decided not to operate.  This is your legal right to see your notes. The curvature would have to be done by xray or mri to know the degree. If you don't feel you can challenge your Dr by yourself take somone with you. Do it for yourself.

      ?Good Luck!

  • lauren1979
    lauren1979 nick94844

    Posted

    Hi Nick,

    Have you tried conservative treatment yet? A back brace and physiotherapy? My 13 year old does Schroth therapy and has a rigid back brace. His kyphosis is 70 degrees. We are trying to avoid surgery By this conservative treatment!

    • Aztamio
      Aztamio lauren1979

      Posted

      Hi Lauren -  my son is 13 years old just diagnosed with kyphosis. He was fitted for a brace this week.  Do you have any advice on how to keep him in a brace for 20 hours a day? 
  • KainCA
    KainCA nick94844

    Posted

    Hey nick.

    I am going through the same thing as you since I was around 12 and i'm 29. I wish I would have done my research when I was younger and go for the surgery

    Only downside at your age some docs would rather operate after your spine is fully mature to not restrict the growth since your only 16. You'll still gain a few inches at your age if you get the surgery.

    I'm about to get spinal fusion from T2-L3 to fix my curve in around 2 months.. doctors haven't told me yet what expected height icnrease just from researching average is around 2-3 inches of height  I'll try and remember to post an update after my surgery.

    • Jay91157
      Jay91157 KainCA

      Posted

      Hi, I had surgery from  T2-L2 pretty much the same as you. I grew 0.5 inch. I am coming up to two years post op and no regrets. A few tough days immediatly after surgery, but once home from my 11days in hospital I was surprised how quickly I progressed.

      ​Good Luck with your surgery.

    • slynn712
      slynn712 Jay91157

      Posted

      What did they actually do to you for the surgery? My husband had surgery and is in worse pain now and it has been five years since his.

    • KainCA
      KainCA slynn712

      Posted

      had the same length corrected, T2-L2, they put 2 rods and around 26ish (forget the actual number ) screws in my back, pretty much the same as jay, few days were rough after surgery but since then no pain/aches. 3 months post op.
  • gstam
    gstam nick94844

    Posted

    Hi, my 16 year old son just had surgery for scheuermanns Kyphosis 3 weeks ago and is doing great! He was at a 75 degree curve when we first got the diagnosis almost 2 yrs ago. He had minimal pain. As a mom I spent months researching and trying to avoid him having to have surgery or knowing I wanted to find the best surgeon if surgery was going to happen.

    We live in the U.S. and after visiting several doctors including the top orthopedist at Children's Hospital in Maryland all the doctors told me that they would NOT recommend the surgery and felt the recovery was too hard. I continued to research as my son hated himself, the way he looked, and started having pain. In Nov of last year I was referred to a doctor at Johns Hopkins in Baltimore,Md. I was told he is the best of the best and to see him. We are very fortunate that this hospital is just over an hour away.

    His name is Dr. Peter Sponseller. By the time we saw him my sins curvature was at 80%. Dr. Sponseller was very positive about the surgery and said he could do it and correct the spine back down to about 40%. After speaking to others who had used him I was convinced. By this summer the curve was at almost 90 degrees and he was having more pain and really felt bad about how he looked

    The surgery just took place 7/7/17. Today He is 3.5 inches taller,broader, thinner and looks amazing. The first week in the hospital was painful but they were very good about pain management. Then he came home and was on pain meds by tablet the last 2 weeks. He is doing great and yes it was worth it.

    As of today we cut back pain meds and he's only been onTylenol.

    If you find a surgeon who is confident in their ability to do this procedure or if you are able to see Dr. Paul Sponseller at John Hopkins i think you should consider it. I was told at the hospital that people fly in from all over the U.S. and from other countries for him to perform this surgery on their kids.

    I wish you the best of luck.

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