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Adult inutssusception

Posted , 4 users are following.

sandra2468
sandra2468

Hello anyone with this condition please make contact.

Any one with a gangrene related intussuception?

How did your symptoms begin?

What procedures did you have?

Make contact.

0 likes, 11 replies

11 Replies

  • debbie58553
    debbie58553 sandra2468

    Posted

    I have one that causes severe constipation I have just come out of hospital with it after the worst pain ever. Now my bowel feels so sore & painful 
    • sandra2468
      sandra2468 debbie58553

      Posted

      Just seen you posting debbie.

      New Year Greetings to you.

      You said you had just come out of hospital.

      Did you havve a suregery?

      Best wishes,

      Sandra

  • kathy90352
    kathy90352 sandra2468

    Posted

    Sandra2468,  In my doctors report she stated "There is a posterior invagination of the more superior rectum into the lower rectum with appearance suggesting intussusception"   My problem is I cannot have a bowel movement withoout wearing a rubber glove and physically removing the feces myself.  Can anything be done about this?  I am getting worse and I am not getting the condition explained well
    • ella19927
      ella19927 kathy90352

      Posted

      Hi, i have an intersuseption for around 3 years i had a proctogram thats how they found the problem, i have an appointment wednesday hope to find out what is going to be done to manage the problem
    • kathy90352
      kathy90352 ella19927

      Posted

      Hi Ella,  Thanks for your commet.  Can you tell me what a proctogram is?
    • ella19927
      ella19927 kathy90352

      Posted

      Hi proctograme is an x-Ray ,which enables them to see the structures in the lower abdomen,and the way they move when you attempt to empty your bowl how long have you been having problems ?
    • kathy90352
      kathy90352 ella19927

      Posted

      I had the exray (proctogram)  It was unsuccessful because I lost the barium when I sat on the toiletlike structure.  I went to Cleveland Clinic and saw a colon rectal surgeon.  I wasn't really happy with the Dr. because she seemed to give up on me because of the failed test..  Since then I read that an MRI could also be given.  The only thing she did was to give me and enama device to use everyday.  She did not schedule andother appointment  with me.  I the mean time I am getting worse.  I have had this problem for about 6 years.
  • kathy90352
    kathy90352 sandra2468

    Posted

    I had back surgery about 6 years ago.  Ever since then I have had a problem with my bowels.  At first i was constipated.  It was reccommended that i take senacot.  Two a day.  This has helped me along with metamucil and plentyof water.  But I still cannot go to the bathroom without removing it manually with a glove.  I spend alot of time in the bathroom bedause I feel like I have to go all the time.  I am checking in to seeing another Dr.  In Pitts.  I will try and see a colo-rectal surgeon.
    • sandra2468
      sandra2468 kathy90352

      Posted

      Hello Kathy,

      Sorry for late reply.

      Has anyone offered you irrigation.

      What did the colorectal surgeon advise?

      Just wondering if a rectal surgery is on the cards.

      Best wishes

      Sandra

  • gillian97397
    gillian97397 sandra2468

    Posted

    Hi Sandra,

    I haven't been on the site for a long time, but am back here looking for more answers. 

    I have multiple problems which started 5 years ago,when I felt my bowel was prolapsing. On investigations it was discovered that I had divertivula disease, IBS, a very weak anal sphincter, an intussusception, vaginal vault prolapse and rectocele. I had suffered from incontinence on & off for years but had self treated with loperamide. Like everyone else on here, had terrible accidents all over the place, and had to take spare underwear with me.

    The vaginal vault prolapse and rectocele were repaired, but for some reason they didn't do anything about the intussusception. After a year of tibial nerve stimulation,anal plugs (which fell out) and irrigation twice a day they implanted a neurostimulator, and things improved. That was 18 months ago, but I still have leakage, and the constant feeling that something is falling out of my bottom which is being caused by the intussusception. My original surgeon refused to do anything about it so I got a second opinion and he was more positive until he got the results of the CT scan, and on Monday he told me it was very very risky surgery because of the leads in my sacrum. So I now have to make decisions. Do I live with what I have, which is affecting my day to day life dreadfully, or do I have the stimulator removed, and see what happens. The surgeon has left the choice to me.

    Yesterday I switched the stimulator off, and I'm not having a good day, but I don't know if its due to the prolapse or the lackof stimulation.

    A warning too to anyone considering SNS. It has caused dreadful problems as far as getting MRI scans is concerned. I needed on for my head (which is allowed) but had to phone 5 hospitals before I could find one that had the right euipment to do it.

     

    • sandra2468
      sandra2468 gillian97397

      Posted

      Gillian,

      Just seen your message.

      What surgery does your second opinion doctor propose?

      Sandra

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