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altered mental state

Posted , 5 users are following.

jackie107
jackie107

can anyone please help my husband has a high red blood count has anyone with this condition suffered from a change in their mental health he has been acting out of character for about 4 months

0 likes, 6 replies

6 Replies

  • sonia15
    sonia15 jackie107

    Posted

    Hi Jackie,

    yes this is very common, i have pv and my mental health is compromised and quite grumpy on bad days.

    If you have facebook there is a support group i am in, that i find most helpful and i found a lot of answers to my fears.

    MPN Family UK / Intl

    Sonia.

  • nandrews
    nandrews jackie107

    Posted

    Hi,

    I find I am quite moody at times too. Sometimes I find my attitude to things changes within minutes, from wanting to do something and then loosing interest and switching to something else.

    It's probably nothing that anyone else would detect, but it sometimes feels like I am a slightly different person! Which is quite alarming.

    It's become more noticeable in the last 2 - 3 years. (25 yrs since I was first diagnosed)

    It's not all bad as the moods can be good moods as well as bad, but it's still puzzeling.

    It may also be behind other symptoms like sleeping bad a night, dreams which seems to continue 'playing' even when I wake up. Strong desire for food at unusual times, like 3 a.m.!

    Maybe others with similar symptoms could reord their experiences here as it's not been raised before tmk.

    Nigel

    • jackie107
      jackie107 nandrews

      Posted

      thank you for that my husband has not been diagnosed as he hasnt been back for a re test but over the last 4 months his attitude and behaviour to me has changed so much so that he has put up an emotional block and says its a marriage problem but cant tell me what i left him for 3 days last week but now im home his mood is a little better but not back to normal he has blood re check monday
  • nandrews
    nandrews jackie107

    Posted

    Jackie,

    Who, on the medical side, have you asked about this?

    It's worth giving them all the information. They may not be able to do anything, but without telling them they can't consider it.

    It might be a medication related issue. Or one that can be helped with medication.

    Nigel

  • harrishill1
    harrishill1 jackie107

    Posted

    Hi Jackie, I have polycythemia Vera, and it's diagnosed after having a high red count. There a few side effects of having a high red count. Your husband should be properly diagnosed by a Hematologist. If he has the same blood disease I have, there are ways to treat it. I at first had blood draws every so often, then was put on Hydroxyurea and it is working well for me. Also, your huisband should tell the Hematologist about all his symptoms. Hope this helps.

    harrishill

  • dianne70747
    dianne70747 jackie107

    Posted

    Hi Jackie, I think that PRV does change your mental state.  I suffer from extreme itching and when the itching is really bad I get very aggitated.  I have trouble to remember things.  I get pressure in my head and sometimes a feeling of light-headedness.

    Dianne 70747

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