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Any cures/medication for PPPD??

Posted , 35 users are following.

edward76742
edward76742

Plz help

1 like, 112 replies

112 Replies

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  • c4013
    c4013 edward76742

    Posted

    Are you currently on any meds?
    • edward76742
      edward76742 c4013

      Posted

      No. Just to ecog test and waiting back for results. Trying to see if it's Meneires. I looked up PPPD and I relate to that quite a bit. Do you have it?
  • Terry6872737
    Terry6872737 edward76742

    Posted

    PPPD is treated with VRT and SSRIs. (Select Serotonin Reuptake Inhibitors)
    • Terry6872737
      Terry6872737 elizabeth48847

      Posted

      PPPD is Persistent Postural Perceptual Dizziness.  You can look it up on Google or the VEDA website.  It is believed that those of us that are pre-disposed to anxiety have a harder time recovering from Vestibular Neuritis.  After 2 months with continuing symptoms most now recognize the need to incorporate an SSRI into the treatment.  The body has normal sensations that as we grow up we simply learn to ignore.  Minor adjustments a slight sensation when we do something tha we don't normally do, etc.  With VN the sensations are magnified because the brain then becomes focused on them.  This is magnified with the anxiety component and it then becomes a vicious circle.  The SSRI is the drug of choice to help to alleviate the focus on these sensations thereby allowing the body to heal itself.  If you Google PPPD there are some really good discussions about this.  Also, look it up on Youtube.  There is a 45 minute interview on there of an audiologist at the Mayo clinic and a vestibular physical therapist.  Their names are Neil Shepard, Ph.D. and Janene Holmberg, DPT.  Really good interview that discusses the issues related to PPPD.

      MAV is Migraine Associated Vertigo.  It is assumed that migraines can contribute similar symptoms to VN in creating vertigo and other motion related issues.

      There are no tests for these conditions.  Just like everything with the vestibular system it is a process of elimnation.  If one has normal test results from the standard VN tests, these may be the actual condition being experienced.

      Hope this explanation helps you to better understand. 

    • Jim_Cliff
      Jim_Cliff Terry6872737

      Posted

      Terry, i had a mesg in email that tyou had keft msg for me. Unable toi find anything on this site.

      If you are a sufferer of this PPPD or thing it might  be something else, look up CSF

  • lynne85105
    lynne85105 edward76742

    Posted

    Hi Edward 

    iI relate to symptoms pppd also.

    specialist put me on SSRI ( Cipramil ) - it didn't help

    I'm taking migraine care ( a tablet brought in health shop) suggested also by vestibular specialist - no result but I'll try anything. 

    My list of help sought is massive. I have lost 100% vestibular function and hearing on one side. Life is so difficult I've considered having my head removed :-) lol

    i have done rounds of VRT exercises but yoga, water aerobics, walking has helped.

    Talking to a phsycotheropist to help deal with this card.

  • lynne85105
    lynne85105 edward76742

    Posted

    .... Oh I'm not depressed or anxious although I should be. ...

    the anti- depressants made me feel depressed - 

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