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Any updates on success from anyone?

Posted , 4 users are following.

skysurfer86
skysurfer86

I had FS 10 years ago and tried a lot of things but nothing worked and it resolved itslef after about 2+ years.  Well, I have it again now, same side.

I'm researching again in case there's something new to try.  Maybe this Hydrostatic Distension (saline injection in the shoulder) thing?

Anyway, it would be great if this discussion could be continued, it's one of the best I have found amongst the scarce information.

 

0 likes, 7 replies

7 Replies

  • maria58274
    maria58274 skysurfer86

    Posted

    Bad luck for getting it again in the same side - from what I've heard that is rare.  We all know what an awful condition it is.  I'm having Hydrodilatation (also seen spelled as Hydroldilation or called Arthrographic Distension) this afternoon.  I'll report back on my experience and progress on here.  Felling rather nervous at the moment...
    • maria58274
      maria58274

      Posted

      Opps - spelling mistake!  It doesn't seem possible to edit your own posts on here.  The guided saline plus cortisone injection seems to have several names/spellings - maybe others too,  Hydrodilation, Hydrodilatation and Arthrographic Distension.  My consultant claims good results for it - so fingers crossed!
    • skysurfer86
      skysurfer86 maria58274

      Posted

      Yes I couldn't edit either or even delete and my post was supposed to be a comment on another one, so it's kinda just dangling out there as a non specific post of it's own now. Glad you responded though and I'm really interested to hear how you go.

      I was unaware this saline thing also  included cortisone, I'm not keen on using that if possible. I had direct sterod injection the last time and it didn't work, and steroids have their own risks and potential side effects.

      Anyway please report back and good luck!

  • Jay91157
    Jay91157 skysurfer86

    Posted

    Wow! Never heard of that. Have you had this confirmed by consultant and if so did they say why this has happened. So many people on this forum have had such a wide experience and hearing this is not good news for us sufferers. How bad is it and has it come on slowly or was is overnight? I feel I am just seeing the light after 3 years and hearing this is making me edgy. Keep us posted please. 
    • skysurfer86
      skysurfer86 Jay91157

      Posted

      I don't need to see anybody to confirm it, I've had it before so I know what it is. It came on slowly just like before. First it was just uncomfortable to use one day, and the uncomfortableness grew week by week and turned slowly into pain when I did my regular gym exercises. After maybe 8 weeks I got the excruciating pain from rapid small movements and the range of motion started declining.  It was only about 3 more weeks until I couldn't move my arm more than 30 degrees out from my side and I had the complete frozen shoulder package of pain and immobilisation. 
  • claire50742
    claire50742 skysurfer86

    Posted

    Oh you poor thing. I am up surfing the net for the simple reason I simply cannot sleep. I have had this condition for six months and feel like I am slowly going mad. I am sick of moaning about it and my poor husband must be sick of listening. I cannot get any sort of help from the Dr or the physio (although the physio tries hard to help me) Ironically the back massage tends to bring some relief as it loosens the knotted muscles and helps with pain............and oh the pain!?

    I wish you well - I had no idea before this, what PAIN really was!

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