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Anyone have a child with cushings or being investigated please

Posted , 4 users are following.

sharon45059
sharon45059

My 5 year old has had 2 high dexamethasone results and urine tests anyone has similar experiences please

1 like, 5 replies

5 Replies

  • vicky61456
    vicky61456 sharon45059

    Posted

    Hi Sharon,  I am so sorry about your child.  I personally have no experience of a child being tested for Cushings and I don't think any members of the forum do, at least not a child that young.  You may be better contacting the Pituitary Foundation , they may have special advice for you or at least a website that is geared for you.  I am always here if you need a chat or support.
    • sharon45059
      sharon45059 vicky61456

      Posted

      Thankyou feel a bit overwhelmed with it all but seeing another endricologist from sheffield children's hospital on Thursday so will hopefully have some answers x
  • sharon45059
    sharon45059

    Posted

    Just an update I saw the consultant today and he said that the results are inconclusive as 2 of the 3 urine tests wete normal but he doesn't think she has cushings. They are admitting her within the next few weeks for a 3 day dex test anyone had similar experiences please
    • christine72782
      christine72782 sharon45059

      Posted

      My daughter, age 13, had a 24 hour urine test and her cortisol level was 225 the range is 1.0-45.0.  We are scheduled for the MRI of the pituitary on 10/25.  I will let you know what I learn as I go through the process.  My daughter has all the symptoms of Cushings.  I would be happy to find an answer. 
    • wendy13357
      wendy13357 christine72782

      Posted

      Hi Christine,

      I recently saw your post and I am curious how your daughter is doing? If you could share her symptoms and how you came about getting a diagnosis I would really appreciate it. Thank so much.

      Wendy

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