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I hate taking Prevacid but it is the only thing that helps me. I have GERD and hiatal hernia which I guess makes me doubly susceptible for reflux. I've been on it for 10 years and have tried on many occasions to cut back on it, but within 2 days I am waking up with burning throat and chest. The doctor says its safe. I'm not so sure.
I've been hoping that the surgeries I've read about, or the "ring" might be the answer. One surgery involves making cuts and the other involves taking tucks in the esophagus. I'm not so sure about the magnetic ring of metal beads - what if it breaks?
Does anyone know anything about them? Have any of you been on PPI's for as long as I have?
0 likes, 11 replies
Barretts susan84872
Posted
I'm assuming you're referring to Nissen fundoplication or LINX magnetic sphincter augmentation device.
My personal views are to recommend Nissen Fundoplication which has been practiced for 50 years, the last 20 years of which by laparoscopic (keyhole) surgery. Laparoscopic Nissen Fundoplication is still considered the gold standard. There have been more recent inventions and innovations in this field but not considered quite as good. 90% of those who had the LNF operation 20 years ago are happy they had it.
LINX presently looks as if it may be the best of the new technologies. It is a ring of magnetic titanium beads on a wire. It has been successfully used for over 10 years. Of those who have been followed up (with a mean average time of 5 years) 85% are happy with it.
LINX cannot be implanted in those with more than an absolute minimum hiatus hernia or with Barrett's Oesophagus.
LINX has had considerale publicity in America where, whenever a clinic introduces the technique, they have proudly announced the new technique - and the device looks pretty.
Torax medical, who make LINX, promote it on the "failings" of LNF in that many recipients of the surgery have difficulty burping or vommitting afterwards. For those who do experience this problem, it is usually short lived whilst the internal scar tissue heals. They do not publicise the fact the majority of those having the LINX implant experience swallowing difficulties - a solid bolus is required, along with good peristalsis, to open the ring.
Torax also sell LINX on the advantage that it is reversible - though LNF could be reversed if it were ever considered necessary.
The magnetic bracelet means if the recipient requires an MRI scan, it has to be given at a low level as it would cause explantation. And in certain magnetic fields, induction would cause heating.
In the 70's an artificial ring was produced to encircle the oesophagus in a similar way to LINX. Instead of magnets, it was effectively a rubber band. There was a clamour to have the "Angelchik" implanted. However 20 years later, the clamour was to have it removed. The band had started eroding the outside of the oesophagus tube. I hope the LINX device doesn't casue the same problems.
I was on PPIs for 15 years (increasing to the very high 80mg omeprazole daily) before I had Laparoscopic Nissen Fundoplication. It was the best thing I ever did.
charmayne28375 susan84872
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Barretts charmayne28375
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I would never suggest anyone comes off them if they have been prescribed, without discussing it with your doctor. Much recent evidence shows they have a probable chemo-protective effect helping prevent the development of oesophageal cancer,
Whereas I respect Jamie Kauffman for her publicising extra-oesophageal reflux (for which she coined the terms "LaryngoPharyngeal Reflux(LPR)" and "silent reflux" ) I have many reservations about some of her theories and what she promotes.
Her talk of eosinophils hanging onto the oesophagus like lobsters hanging on a post do stretch incredulity. The acidity or alkalinity of foods has been hown to actually make no difference. And her advice to drink alkaline water could actally be dangerous. (Alkaline water has been shown to be a fraud perpetrated by bottled water companies in America - I can provide links if anyone wants.) There has only been one research study that shows alkaline water can be efficacious and that was conducted by Jamie Kauffman. It may have gained peer review but hasn't been replicated.
Unfortunately, for all the good she may have done, Jamie Kauffman now seems to be guided by profit in promoting her books.
The key to controlling your own body's reaction to foods is to identify your particular trgger foods.
The key to controlling reflux is not to overfill your stomach or do anything that compresses it or tips it whilst it is full.
charmayne28375 Barretts
Posted
Will try out dr kaufmans diet and see for myself if it works seems to work for a lot of people as there is a lot of good feedback on it
Barretts charmayne28375
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An archive of research links relevant to acid, reflux, arrett's, adenocarcinoma etc is maintained on the Barrett's Wessex website with daily updates.
You may wish to check out "GASTROESOPHAGEAL REFLUX DISEASE AND PROTON PUMP INHIBITORS" on Google scholar for a starter.
janzz charmayne28375
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charmayne28375 janzz
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janzz charmayne28375
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charmayne28375 janzz
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ali317 susan84872
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susan84872 ali317
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