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Hi all
I hope this forum is still active I live in Australia Brisbane and have just been diagnosed with this. I've had it for 3 weeks now and I'm questioning how long it will last. Doctor has said if not better by Monday to go see him for a referral for an ENT specialist but I need to go to work Monday. I've had 3 weeks off already and it doesn't feel like it is going away. My biggest thing apart from getting ear aches and headaches is my balance is completely gone. I fall over when I walk and I can't stand straight. I thought this would be over in 3 weeks but I'm worried it might last a while. Has anyone heard of this only lasting a couple of weeks? I'm worried that it might last months or years and this stresses me. What do you guys do to deal with this? Also is there any support groups around for this? I feel like it's all in my head as I look fine, but then I'll have an episode of dizziness and need to lie down.
I'm kinda frustrated as I don't feel any better than I did 3 weeks ago.
0 likes, 22 replies
deb39563 brendan03485
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susan15198 brendan03485
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Keep us posted
fasthorse brendan03485
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h1954 brendan03485
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jonAustralia brendan03485
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brendan03485
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Appreciate it. I've decided not to go to work tomorrow and take as much time as needed. I'll get a referral tomorrow to go see an ENT specialist. Don't know how others go if they continue working with this, but i think it's probably best for me not to, until I'm recovering.
Thanks again. I'll let you know how I go when I can get an ENT appointment.
Cheers
Mary_McAvoy brendan03485
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christine15200 brendan03485
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fasthorse christine15200
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paula59 brendan03485
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donna40025 paula59
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Hi Paula when I went and saw a specialist in Brisbane he recommended that it could be silent migraine but he did the epily manoeuvrer and bang the spins came on with the nystagmus in the eyes. I have BPPV!
paula59 donna40025
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donna40025 brendan03485
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I started to spin out, failing to walk without stumbling puppet like (thunderbirds). I have vomited when the spins are bad and unable to go into the shopping centre without feeling stressed and wanting to collapse hanging on tight to the trolley too scared to look up or down the aisles etc. Fluro lights are a big no, no with long corridors reflecting unnatural lights.
Computers seems to be limit so im typing this fast. You are not alone and yet we feel we are. I recently saw Dr Lomas in Brisbane who has confirmed that its BPPV and now heading to the Balance Clinic in Sydney at the RPA.
Your work is depending on what you do. If you work with machinery or high places you could be in trouble. I felt great one day only within seconds of spinning uncontrollably to the point of screaming for someone to help me/catch me and in bed for 3 days after that.
As to see Dr Lomas as he is a specialised in this field and I do know there is a balance clinic/physio in Brisbane , it’s just not as accurate as the one in Sydney as they use the Omniax Machine that has staff of experts in this field. However the Brisbane one I believe are good and close by for you to go and see. Look up Omniax Chair/Machine on Google for more information. However I have BPPV (vertigo) where yours could be entirly different until its confirmed. Drop the GP and ENT unless they specialise with Vertigo hence thats why my GP sent me down to Brisbane with support of my physio to see Dr Andrew Lomas.
Best of luck ! Remember to youtube BPPV AND Vestibular Neuritis as you never know, also the Omniax Chair - I believe Dr Mariam Welgampolla - Sydeny is the best in the field and Im not taking any short cuts now I know this is not going away too fast.
marie43202 donna40025
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interesting post on the Omniax Chair, thank you for sharing. When is your appt? Please let me know the outcome of that test. Thank you
marie43202 brendan03485
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Sorry to read that you are going thru this. I am in the same boat. I, too, have the ear pain which I don't read too many people having which makes me wonder if this is a vestibular condition. I also experience ears feeling full, dizziness, intermittent vertigo and now difficulty walking at night. I have my ENT follow-up appt tomorrow so will give update to everyone. Try not to let this get you down in spirits. As you can tell from the replies, some have this for a short time and some longer so the more you get bummed out about it, the worse for your healing process. Think positive. I myself am in the midst of a job change and had to cancel job interviews so this couldn't have come at a worse time. Need the $ for specialist appts. I totally understand your frustrations but you do have a great support group here. Take care and keep us posted
brendan03485 marie43202
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How did your ENT appointment go?
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