bowel

Thanks for your message. At the moment i cant sit for long or stand for long its due to a rip in the anul canall and the pain is. Bad

Hi Kristian ,your still in pain,me also sat here with a cushion a friend has made me ,Dreadful having this ,makes my anxiety raise up due to the pressure there on bad days ,like today .How it is ,and will continue until a Dr knows how to put this right once and for all ,I've done exercises for Sciatica etc from You Tube ,they say on a site Im on drs say not to do pelvic floor as that irritates all the nerves connected to that area .

   Chatting lets one know your not alone on this journey for a cure 

      Hope it doesn't spoil our Christmas to much friend X 

Thank you Marlene, you've become such a wonderful friend since we met here.

I'm still working full time and the sitting at my desk is oftentimes brutally painful.

I have heard of Botox injections in our problem area.

I want my coccyx removed but the doctors advise against the procedure.

After suffering so long I will try anything.

I have three cushions and given up on them. The area cut out to free the area from external pressure actually creates a bulging pressure from the inside.

I'm convinced it is a muscle problem. Stress seems to aggravate it.

Has your doctor prescribed a nitroglycerin ointment Lisa? It's applied internally.

Marlene I wanted to also say my physical therapist suggested an X-ray of my right hip. She thinks with it being out of alignment it's a possible cause. Muscle connecting to the tailbone. Xray didn't show anything. The orthopedic then ordered an MRI of my hip. Before going to that extent my family practitioner wants to visit about it.

I've read this is sometimes referred to as cyclist syndrome. It amazes me that so little is known about how to cure the problem.

Here in the United States they put you on narcotic pain medication and forget about you.

I look forward to hearing from you as well as anyone else who suffers from the same pain.

Wishing you a very merry Christmas!

Hi ,this is a dreadful situation ,mine began from that weight loss when I became ill ,I've had this nearly 10 yrs come next July ,like you Khristian I had to sit on bed pillows  my coccyx was so tender ,what with that and lost backside muscle ,my friend ( local ) who had same virus as myself and same after issues ,was having to sit on bed pillows also  left her in same condition as myself .We talk often  as we use same Drs surgery but not .

same dr .Weve both put weight back on ,but still have this .I agree no help out there .

   I to have a hip problem ( right side )interesting you have mentioned hip .

   When I saw that article in our Daily Mail was where I first heard of Cyclist syndrome ,even showed it to my Dr ,as to what I was feeling there ,still no further investigation into it .were talking what 5 yrs ago now almost .

   Can't get drs to listen and act ,but hey Im living with this pain / ache .It feels like I've got AV as well ,that came at same time ,so is it the bowel nerves causing that feeling ,all due to the nerves there being intertwined .

it radiates down back of my legs ,as sciatica would .The Dr in article had only seen one case of this in all his years as a Dr .

  How you manage to work ,take my hat off to you I truly do .

 We always have a quiet Christmas ,no grand children,so not a lot of shopping thank goodness ,as I've got Mdds as well ( balance on a boat) .What a mess .Chat soon have good Christmas ,feet up when you feel the need .X 

Hi looloo43,

I just happened to read your post and wondered what kind of treatment you received for your colitis, ibs etc? I had an illeostomy takedown 6 years ago and ever since I've had some potty problems. Mainly now I have been suffering from tenesmus and I'm scehduled for a colonoscopy soon. I too was prescribed (nitroglycerin ointment) for the anal spasms but when I used it for the first time last night I didn't get too much relief. I wondered how much ointment you used and how often you used it for your spasms?  I was also prescribed an antispasmodic which helps some. Did you notice if your diet contributed to the spasms/anal fissuress/ibs/colitis and do you have any advice on how to cope with the PAINFUL spasms?

Thank you 

Hi Mally. I was so sore & inflamed in the rectal area at the time the only way i could apply the nitro glycerin ointment was with a cotton bud as it was super thin. i used to put a centimetre of it in 3 lines down the top of the cotton bud (so it is all round the top of cotton bud). put one leg on the bath other on floor & very gently & slowly insert & wiggle the bud a little to get the ointment all round, then gently & slowly pull it out & dispose of in a nappy bag!(i dont have children btw!) i could only do this at bedtime, as i found within 5-10mins i felt a bit drowsy & it did give me headaches for about 3-4wks that got milder with longer use. i couldnt use in the morning due to the drowsiness & headaches as i work part time. with regular use for 12wks at nightime, this healed the tears each time. it did relieve the pain & spasming at bedtime too. i think the trick is to try to relax, do it slowly as i instructed above so you get enough of the ointment all round & wiggle it, & pull the bud out slowly so you dont bring the ointment out with it. if some of the ointment does come out on the bud just dab it back around the "hole" so you dont disturb whats inside. regarding the ibs-i dont eat any fruit, little veg or no salad especially leafy greens, as they make it worse. you get to learn what triggers symptoms of diarrea & stomach cramps & bloating as you eat things. & everybody can be different. i found the fodmap lists a waste of time personally as many of the foods that are ok, are not for me & vice versa. i cant eat rich curry sauces anymore, no brown bread or high fibre as cant break it down, white bread much better. bizarrly i can eat a couple of spoonfuls(no more) of asda cheese colesalw with dinner & sauteed mushrooms dont give me trouble either! my specialist dietician suggested the root veg family which i tried, & i can tolerate mashed swede & carrot, squash in roughly handful size portions without problems. i feel sickly almost every morning, so my brekkie is half a pint of 1% fat milk with my meds. milk has been a life saver for me when appetite not good or feel sickly as it is a food but in liquid form & soothes my stomach, reduces acid, & reduces sickly feeling. i dont take any meds for ibs but have been taking a liquid probiotic 40ml per day for last 6mths in the morning which has helped general stability with ibs, reduced cramps & bloating. it is expensive but proven by kings college hospital to help people with bowel conditions & doesnt die off before reaching right part of intestine. in morning also take a multivit with my milk . in evening after my main meal of day i take a cod liver oil capsule & evening primrose oil capsule (normal strength) as these are best taken after main meal of day. i take 20mg esomeprazole in morning as if i dont, i get nightime reflux in my oesophagus while asleep. for colitis i have found success with balsalazide 3750mg day (3 capsules am/ 2 capsules pm. had tried several aminosalicylates over last 4yrs without maintaining long term control of colitis without courses of steroids, but this one seems to work - have been on since jan2015 now & no side effects with it for me. the med that made the biggest change was when i was diagnosed with bile acid malabsorption - i take questran sachets(prescription) that you mix with water-it looks like wallpaper paste & tastes a bit like junior disprin! its fine! i take 2 sachets in morning at least an hour after my other meds, & 1 or 2 sachets before bed at least 4hrs after any other meds. this eliminates my nausea within about 10mins, & largely controls my diarrea, rectal soreness, stomach ache, urgency. incredible difference. so all this together works to control my ibs-d, colitis, bile acid malabsorption & fructose malabsorption! i still have 3-4 bowel movements a day, but mostly normal consistency & more active in the morning, so i have found giving myself 3hrs in morning before i need to go anywhere eg work, an appointment, allows my bowels to settle down & then i can get on with my day 90% of the time. i still get the odd blip which i would expect with all these conditions going on, but even on odd days where i go 6 or 7 times it is far less urgent, less painful, & no panic now- i was virtually housebound before treatment & off work for months. i can even go out for a meal now, & if i want an evening where i can enjoy some veg out for a meal i take 2 imodium plus half hour before i eat & dont get any problems.(only do this occasionally though for a bit of freedom when going out-not a good long term habit). hope this helps Mally, i think i covered everything you asked, but anything else you want to know feel free. xx

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Hi looloo43,

Thank you very much for the info. I will definitely try the same tactic for the ointment. I am eager to to have my scope and hope that I will know more afterwards. These spasms are painful. 

Thank you again!

Mally123

Hi Mally, you are welcome. Hope your scope goes well. I must warn you, you will find this painful with a fissure(from experience) i would urge you to ring up the hosp dept doing this asap & tell them you want sedation for pain relief. you would have to arrange for someone to pick you up. its not anaesthetic, you are still awake, but it considerably lessens the pain & they leave you to doze it off for about half hour afterwards before someone picks you up. i have sent you a private message to tell you the name of the probiotic i use for you to have a look at if you wish(manufacturer have their own website), as the moderator on patient uk deleted the name in my original long message to you. take care & let me know how you get on. x

Thank you! Yes, I plan on being sedated. I really appreciate your input.