Burning tingling feet

Hi Sandra

 I read many different symptoms of restless leg syndrome and often wonder how the burning sensation can be put under this category 

I have sufferex now for a year with burning which started off in the left leg then went to the right leg and is more noticeable when I go to bed but do get it sometimes during the day.

have been on many different medications the latest being pregabiln which do nothing  for me .

restless legs is not what I suffer from its the burning sensation.

i had an MRI scan which the neurologist said I had transverse myliestus which when I read about it said Ms. I panicked as one would and took myself off to the local Ms centre which fortunately for me is in the town in which I live. I have one hour sessions of pure oxygen but tbh that doesn't help either .

inhave recently had an electrode study and have the results but tbh do not know what they mean but does not say Ms. A lumbar puncture is next week to see what ails me.

will it show what the burning is I don't know . Reading about it I find it could go as quickly as it came , just waiting for that day.

hope you get answers 

christine 

 

Hi Sandra,,,, I have had the same sensations for years, the doctors told that it was restless legs syndrome,but I did not want to take the medications that they were going to give me, so they told me to take Tylenol 3 for chronic pain, saying to me , that if it worked, it was better than to take other medications.So , since the pain was only during the night, I take now two Tylenol 3, each night before going to bed.and it works.

Hope that it will work for you too.......it s so much better than to take the other kind of medications, which have so much side effects.

Hi Sandra 

so have you had mri scans etc and have they every indicated you could have ms. I have had it all even had a lumbar puncture but every test I have comes back inconclusive . I am still on pregablin which do nothing for me and tbh why I take them I dint know. Going forward well there is no going forward for me as no more tests as had them all,  the tablets you take are they a pain killer? Where do you get them from a chemist or on prescription ? 

Why they ever said Ms I do not know but my symptoms apart from the burning in my legs do not relate to Ms

 

Hi Sandra,

If you have not done so, I would first rule out a vitamin or mineral deficiency (easist way to rule out your condition that is often overlooked). Your doctor may have already looked into this, not all do, so I thought I would mention it. Please be sure to rule out a Vitamin B-12 deficiency (sometimes also B6). B vitamins play a vital role in driving several important biochemical reactions in our bodies, which include reactions required for the function of your nervous system. Therefore, a deficiency in vitamin B-12 can cause several health problems, including permanent nerve damage. Nerve damage resulting from a vitamin B-12 deficiency can cause symptoms that include a burning sensation in the hands or feet. 

Other modalities that can cause burning and shock sensation in the extremities is low thyroid. Many doctors will look at a thyroid result and conclude that it is "within normal range." They look at the numbers instead of treat the symptoms. However, even though your thyroid may be "normal," you want it to be at an optimal range.   

If you do indeed have RLS along with your burning/shock sensations, take a high quality Magnesium supplement (not in the form of oxide, sulfate, gluconate or aspartate).  If you experience more issues at night before/during bedtime, take up to 500 mg before bed. I use Sleep Minerals II and it is extremely effective. Of course, consult with your doctor before taking any vitamin or mineral to make sure it is safe for you and will not interact with any other medication you may be on (highly unlikely).

Finally, the less likely cause of your symptoms could be low Riboflavin (30% of seniors are deficient in riboflavin) can cause electric-shock-type symptoms.

Hi Sandra 

i too was tested for vutamjn b12 deficiency but negative. 

The tests you are about to have yes have had them,

i was reading that stress can cause these burning sensations and I are had a lot of this and my symptoms started ariund that time. I moved jobs but after several months of another stress job it's geting worse. I have now resigned and going to chill for a few months and just relax lol.

gabapentin does nothing for me but take 600mg a day. Amitriptyline made mouth dry and could never get my bum out of bed in the mornings.

Do you find gabapentin makes you feel wobbly when you walk. . Straight line walking is a thing if the past for me.

let me know what yiur tests show am interested 

chris 

Hi 

I get burning in my legs from knee down and sometimes up to my ummm private bits. It's mostly when I sit and relax but bad when I lie in bed. I very rarely have IT in feet or toes not yet anyway. I find it hard too explain it's like burning like pricklyheat but inside .

i have tried cooling gel ice packs nothing works. Yes I have RLS but only because I mive them to find a cold spot in the bed .

how long have you had it have yiu seen a neurologist yet