cervical rib

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Hi Im looking for some advice,I have been diagnoised with cervical rib on both sides and also thoractic outlet syndrome. I have had loads of tests and been told I have got to have the ribs removed but before they can do anything I have got to have one more test that is a VENOGRAM of the upper limbs, they have told me I will need anersectic and I will be in for the day but Im still non the wiser of what they are doing other than having the dye. I was hoping someone on here has had it done and could tell me more about this procedure. Thankyou in advance.

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9 Replies

  • Posted

    Hi Wendy, the venogram is to check for any clots and conditions of your veins prior to surgery, that one is done if you have a clotting disorder or at risk due to other medical conditions. As for the sedation which I think you were talking about is to help you relax and stay still for the procedure. If you are like me they even give me something to relax even for MRI'S so I don't don't move or freak out on them, lol.. It's actually pretty good that the MD is going to do that before surgery so he or she knows if there is a problem before they go in blind so there is no unexpected problems. Also over time with the cervical ribs and compression of the arteries and veins damage can occur so really smart on their part to check for that first. It is really like an mri or CT scan in most part just let's the surgeon see your veins more closely and really not to much to worry about. Most of us here have either already been through surgery and most of the testing so any questions you have can probably be answered. I actually found this place after my surgery and has helped me vent and cope a little because no one else know what we are going through. Hope I gave you a little comfort on your upcoming test.
    • Posted

      Thankyou Roger that was really helpful, I have had so many tests done since October and they have said that thias will be the last one, I have the CT scan ann nerve tests etc and was fine but this one has made me feel nervous because they have told me that they will be keeping me in the hospital for about 8 hours! Originaly I was meant to have only the right rib out but now they think Ive got to have the left out aswell. Did you have cervical ribs removed and how did you find having a venogram was you in hospital as long as they say I wilbe?
    • Posted

      Hospital stay is just for observation due to sedation and monitoring for that. I had right side surgery in Feb but mine didn't go so well due to surgeon error. So due to some anxiety you seem you be having already I would read through some of the other post because the surgery has a really good success rate. Your surgeon will explain all risk and make sure you ask them how familiar they are with doing the surgery it's self. But if they are putting you through the testing you have already have done and especially going to do the venogram to make sure there are no other complications I say you are in pretty good hands.
    • Posted

      Yeah they have been very good and have said that all the testing is because they dont want to miss anything they are slightly baffled because all the problems are on the right side and thats where Im suffering yet the CT scan has revealed that the left side is alot worse but Ive not problems with my left side. Thankyou again for enlightening me of has really helped and I really hope that you are recovering from your surgery.
    • Posted

      I guessing you are right handed, that would explain why you would have symptoms in that side verses the left due to you use that arm more probably carry bags ect on that side straps on the shoulder ect. Worse thing you can do with cervical ribs is carry a shoulder bag due to it puts pressure and increase symptoms. Second is placing hands above head cuts blood flow off and can actually get dizzy or pass out which was my case. Let us know how your test goes and feel free to keep talking to people here it really does help, your not alone..
    • Posted

      I am right handed but carry my bag on left but your right I do everything with my right hand and also I work in a school so writting on boards etc doesn't help. Yeah Im glad I joined this site because its good to hear other peoples stories who are going through it. St Thomas are a fantastic hospital which helps aswell they have been so good with me.
    • Posted

      Roger, your kind advise is wonderful to Wendy. I have some questions for you please. I am my infancy about TOS. I have been told I have cervical spine rib, right side. I have had leg pain, knee pain, ankle pain and at times terrible disabling pain in both wrists. At present, my situation, for a few months now have been terrible neck pain, up the center tocause severe head aches. I am 64 and have been weathering nthese symptons my entire life. I have had in the past year, bone scans, exrays, shock test in my arms and the results back to my GP tell me nothing. What kind of specialist should I go to for TOS corrective procedures. I am so tired of the pain. I am now ready for action. Thanbks for anything Roger. Also, I am so sorry for your surgery not going well. What happened?
    • Posted

      That sounds quite familiar, GP usually don't know much about Tos and can only go by what the person reading the xray ect tells them. Now come to find out with that being said I live in a rural area so not a lot of specialty practice ect that I would trust, also my GP did tell me that my xray's, MRI'S ect were sent to another country to be read for like 3 dollars and they charge your insurance like 150 at the hospital. So I always request a copy on disk of all test done now. For example went for chest xray two weeks ago. Now I'm post surgery for tos and missing half of my first rib. The read come back as lungs clear no bones abnormal, lol.. in which after I had my GP look at it while in the appointment we both noticed there was a possible problem with my lung and mri last week confirmed that also. Now as of specialized care if you haven't been tested for arthritis like RA or auto immune disorder as of yet that's the first thing I would have the GP do for you if he has not already you are having more wide spread pain that usually goes along with that. I actually ended up being sent to the thoracic surgeon from rheumatologist after all testing was done. Although mine started around 35 and took almost 10 years because of my age for someone to take me seriously and symptoms getting worse in my 40's.
  • Posted

    Hope you will manage to get someone to help you Steve, the only way mine was diagnoised is because I had terrible back and leg pain and they did xrays and mris and found out I had siactica and my disc is prolapsed in 3 places then also found cervical rib then they kept finding it was worse than they thought. Im only 34 but reading peoples stories on here has made me more aware at how many young people have it aswell.

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