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CFS/ME or Lyme disease?

Posted , 7 users are following.

shane92467
shane92467

Hi all,

I just had an interesting conversation with someone regarding my symptoms for cfs/me and they raised an interesting question regarding testing for lyme disease.

I have looked at the symptoms for lyme disease and it is all very familiar symptoms to what myself and a lot of others here experience.

 I was asked if this has been checked in the blood tests that have been carried out and I am not sure if this has been checked.

I have had alot of blood tests done and all has been clear but I am not sure if lyme disease was checked as not sure if there is a "special" test for this.

Has anyone else here has lyme ruled out and if so is this checked with your usual blood tests? I see that you don't always get the "bullseye" rash and can just get the other symptoms so is something I will raise this with my Dr. but don't no if I should contact him just to enquire or wait until my next appointment.

Just wanted to throw it out there to see if this is something a Dr. would rule out automatically based on the symptoms of cfs/me.

0 likes, 4 replies

4 Replies

  • jackie00198
    jackie00198 shane92467

    Posted

    One thing I think you can probably check online is the incidence of Lyme in your area. This would maybe tell you the probability of your contracting Lyme.
  • carla21795
    carla21795 shane92467

    Posted

    Totall Agree with Jackie, lymes is contracted through ticks and normally there are reports that they are in your area. If you have been bitten abroad and dismissed as a flea or spider or mosi bite maybe worth having the test, but normally tick bites are more severe. 
  • dawn94288
    dawn94288 shane92467

    Posted

    My neighbor was diagnosed with Fibromyalgia without knowing that she actually had lyme disease.  Apparently, she got a false negative on her original test for lyme disease.  I guess she was fortunate to get the test re-done.
  • KPD
    KPD shane92467

    Posted

    Hi Shane,

    When I was diagnosed 25 years ago for CFS, I was lucky enough to have an experienced infectious disease doctor check me for lyme disease. It was so long ago, so I don't remember the details, but I do think it was a specific test.

    I would ask you doctor to order the test needed. Unfortunately, many other diseases must be ruled out first before a diagnosis for CFS can be confirmed or made.  Good Luck. KPD

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