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Chiari

Posted , 4 users are following.

valerie_49911
valerie_49911

Hello.. New to this. I am 49 and recently told by Neurologist that I have an 8 mm type 1 Chari. He says not to worry and most likely nothing will anything be done but I have had increasing headaches, balance issues but most concerning "brain fog" and my vision has gotten really bad in the last 6 months. I had an MRI 2 years ago and this did not show but an MRI in Dec 2016 it was there. Neurologist says incidental finding.. I have done research and it freaks me out. Am I overreacting or should I be concerned? Should I push for a NS consult? Thanks I appreciate any feedback good or bad!

0 likes, 6 replies

6 Replies

  • julia_89059
    julia_89059 valerie_49911

    Posted

    My advice is to see a Chiari specialist most NS don't understand all the symptoms of Chiari and tend to push off like we are overreacting. Get a second opinion and go from there. No symptoms can be debilitating and your right to be concerned. Good luck and be strong. 😊

  • yeltzer
    yeltzer valerie_49911

    Posted

    Its the old story Neurologist v Neurosurgeon. Many Neurologist (medical) seem ignorant with the problems of Chiari as they are not surgeons and try to dismiss it. Push for a Neurosurgeon. Can I ask where you are?.
    • valerie_49911
      valerie_49911 yeltzer

      Posted

      Houston Texas. I don't know if 8 mm is even significant enough to push for one.

  • judy2201
    judy2201 valerie_49911

    Posted

    Some people can go thru life having chiari but no symptoms but once symptomatic my advice is find a chiari knowledgeable surgeon because chiari is progressive
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