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Hello. I am just over 3 months post op. I had a Chiari's decompression surgery. My brain was 10-12 mm outside of my skull. The surgery was supposed to be 2 hours, but ended up being 4 hours because I was bleeding out and when they cut me open, my brain was so swollen that it busted out of my skull like a can of bisquits. It really concerned my neurosurgeon and he said that he had to work fast. The pressure, for the most part, was relieved; however, I have other symptoms like balance issues, memory loss, speech problems, etc. I cry a lot. My neurosurgeon dismissed me and said that I was fine and if I had any problems to see a neurologist. Well, I did. The neurologist gave me tons of meds, did an MRI of my neck and my head. The MRI came back "alright." If my MRI was okay, am I just having post surgery symptoms? I feel like I'm going crazy. I don't feel like myself and I hate the thought of living on meds the rest of my life.
I have always had migraines my entire life, but a couple of years ago, the headache changed. I was healthy and a long distance runner. Now, I can't even walk long distances. I just don't know any more.
I don't know that many zipperheads, so I think I just need to talk to people that are going through the same thing. I feel like no one understands.
I guess that's it. Thank you in advance.
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melanieheather satjjordan
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