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chronic urticaria and delayed pressure urticaria

Posted , 14 users are following.

Guest
Guest

I have had chronic urticaria for nearly 12 months now - well this episode - it started in January 2006 after taking a drug called metformin - or so I thought - i have seen several consultants, been in and out of hospital and today have been told it could be delayed pressure urticaria. I am on telfast in the morning and zyzal in the evening - i have tried ciclosporin which didnt work at all. When I have a bad attack - (which means worse than usual as i have had it every day since last october with no break) I get shakey, shivery as my body is trying to cope with the heat from all the rashes. When i get excited, stressed, not enough sleep, my period, ill, exercise, hot, alcohol it gets worse so most of the time then!!!! i have now been suggested to use sulphasalazine - has anyone else tried this? I am taking steroids but 8 x 5 mg for 3 days only to try and get it under control - i have just been in the car for 7 hours to get to my specialist appointment and that has made it go like mad!!!! - has anyone heard of any connections with stomach problems and urticaria - I seem to get bad diarrahoa when i have a bad attack and it all started when i had a sickness and diarrahoa bug in December 2006. Does anyone have a link with periods? I have a lot of periods and have endometriosis and polycystic ovaries and wondered if anyone had the same and had urticaria - people with this terrible disease need to keep finding out more information as I do believe there is something that causes it - whoever finds it could become a millionaire! there must be more to life than taking drugs which in the long run will cause something else!!!! Any suggestions or comments welcome - all the best to all you itchy and scratchies out thereXXX

0 likes, 22 replies

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  • Guest
    Guest

    Posted

    I also have both, chronic urticaria, and delayed pressure urticaria(dpu). I have had this condition for over 6 years, my dpu has lightened up, but i think it is only because I know how to manage it better, such as no exersize, and no heavy bags, etc.. My Urticaria has not gotten any better, but in the summer time it does lessen, I also had endometiousis(?) , and horrible cramps but this has happened to me since I was 14, I am now 27, I am not sure if it is related, never gave that any thought. But here's a wacky idea, [b:c9392ae101]every time I drink alcohol , the next morning i wake up with less hives. I have noticed this for the past month[/b:c9392ae101] its so crazy, I know, I am going to post a more detailed blog later, so look for that

    take care and good luck

    • johnthetrom2
      johnthetrom2 Guest

      Posted

      I have dpu and went gluten free which cleared my symptoms within 2 days. As long as I stick strictly to a gf diet i am fine but if I have any food which has wheat in it the symptoms return.
    • hilary26196
      hilary26196 johnthetrom2

      Posted

      Hi John

      Interestingly I am also gluten free but it hasn't cured my symptoms which have affected me badly all my adult life.  I take Levoceterizine 5 mg daily and that almost keeps it under control.  The urticaria gets into my joints which is very painful as well as the soft tissue.  I am glad you are feeling better.

  • lori08201
    lori08201 Guest

    Posted

    After suffering with DPU for 20 years, I was diagnosed with H Pylori.  After taking the meds and testing H Pylori free, I am DPU FREE for almost a year now.  I cannot begin to tell you how much better my life is!
    • brett10901
      brett10901 lori08201

      Posted

      Hi Lorio8201, could you please explain the symptoms that you experienced before receiving your diagnosis, in addition to what made your condition better/worse? I would really appreciate it. Thanks!

  • lori08201
    lori08201 Guest

    Posted

    After suffering with DPU for 20 years, I was diagnosed with H Pylori.  After taking the meds and testing H Pylori free, I am DPU FREE for almost a year now.  I cannot begin to tell you how much better my life is!
    • johnthetrom2
      johnthetrom2 lori08201

      Posted

      I have dpu and went gluten free which cleared my symptoms within 2 days. As long as I stick strictly to a gf diet i am fine but if I have any food which has wheat in it the symptoms return.
  • hilary26196
    hilary26196 Guest

    Posted

    I wonder how you are getting on now that it is one year later.  The only tablets I have currently found for this condition that help are Levoceterizine 5 mg (Zyzal).  However, they were not available in my local chemists when I went for my last prescription.  Strangely I have had many of the other problems you suffered and I am still suffering from the urticaria 47 years later.  I always blamed the contraceptive pill for starting my problem but it could have been the stress caused by getting married and moving away from home.  Good luck with your problems.
  • Cureless
    Cureless Guest

    Posted

    Hi! My symptoms get worse during my period. I also get shaky and sometimes even pass out when I have bad outbreaks. I don't have pcos or endometriosis and I don't even have bad periods, but I do get angioedema during every period. My Dr. suggested the fluctuations in hormones causes the flare ups to get worse. She wants to put me on birth control so I'm not fluctuating as much but, i don't want to do that just yet. Good luck!

    • loridpu
      loridpu Cureless

      Posted

      Hi! Mine also gets worse the week of my period. I am guaranteed to swell and have hives almost every day a week before my period. I have been dealing with this issue for 10 years now. Have gone to every doc you can imagine. My new doctor just put me on an antihistamine called AllerDHQ I will let you all know if it helps at all. When it is really bad, he will call me in Prednisone which usually helps for the time being. I am 50 now and am actually considering getting on disability because this issue gets so bad at work. I tried birth control about 5 years ago to see if it would help and I swelled worse. It may work for you though. Hope you find some relief soon!

  • michelle07282
    michelle07282 Guest

    Posted

    I also have chronic spontaneous delayed pressure urticaria and chronic oedema. I get diarrhoea, stomach pain and I did have heavy periods which they said possible endometriosis. Due to this I had a hysterectomy. I react terrible to heat and since I have had this condition it has ruined my quality of life including my job. I'm due to have a biopsy on the bowel next week but who knows what the outcome is.

    • johnthetrom2
      johnthetrom2 michelle07282

      Posted

      Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.

  • SebastianCHN
    SebastianCHN Guest

    Posted

    I pray everyone under this post is cured of this illness. The levocetrizine and plaquenil combination alleviated my symptoms and allowed me to enjoy life again
    • SebastianCHN
      SebastianCHN

      Posted

      In addition to lots of prayer to Jesus
    • johnthetrom2
      johnthetrom2 SebastianCHN

      Posted

      Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.

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