Coeliac Disease - Possible Dermatitus Herpitiformis and Lactose intolerance?

Hi, I'm new to this but wanted to know if there was many people out there that are experiancing the same problems as me? Very longgg story.

Basically i was diagnosed with Coeliac Disease approx 5 years ago...now im not going to lie its taken a long time to manage it and i often struggle to cut gluten out completely but i felt that i had learnt what triggers it and what doesnt and managed it that way. Anyway this year i wanted loose a few pounds for a holiday so went very strict with my diet for about 4 months but ofcourse once the holiday had been and gone the diet slipped and i fell back into old habits and gradually my coeliac has flared up.

Since October i had started to show a variety of unusual symptoms for me and i'm struggling to get a solid diagnosis from doctors.

My first symptom started with a raised bumpy rash over my forehead and cheeks..wasn't itchy or red and was only really noticeable to touch, this passed and then a few days later i developed the same rash on both sides of my neck..wasnt very itchy just stung when cold air got to it...pharmacist advised me to take antihistamines...and eventually it dissapeared.

Then i noticed a red raised patch appeared on my neck roughly around 3cms wide and tall, it was only slightly itchy and looked dry..i decided it could of been a form of psoriasis and booked a doctors appointment for the following week to discuss it along with my very achey elbow.

On the run up to this appointment i noticed i had developed a sore on my chest and it looked slightly blistered..but i carried on and just added it to my list..my doctors appointment was on the friday and i had got to the tuesday when it all started to go wrong...tuesday i had a latte around 4pm and by 6pm i couldnt eat a thing without needing the toilet and nothing was staying in me (Disgusting i know!) Put it down to the coffee irritating my stomach..but then the next day the stomach pain continued and i started to feel really run down and was developing flu like symptoms..wednesday for lunch i had a jacket potato with cheese...usually a safe option but within 30 mins id noticed id developed more blister sores on my chest, sides, neck and back so decided to go to a walk in centre.. there i was diagnosed with Pityriaisis Rocea..id never heard of it but accepted and waited to see my doc the next day...after speaking to my doctor he agreed that it may well be that or Dermatitus Herpitiformus and has advised me to go back in 2 weeks prescribing me only steroid cream.

Now initially the blisters stopped appearing and i was calm, the headache dissapeared after 2 days and the flu symptoms were gone. But yesterday evening i ate cheese on gf bread....30 mins later i had a banging headache..gassy bloated stomach and my legs began itching (this had been on/off for two weeks but there was no rash) and today ive woken up with MORE blisters.

The more i think about it the more i think it can only be DH as its reacting to what i eat but to me Dairy seems to be the culprit? I also have a bumpy rash on my legs and arms but initially put that down to Keratosis Pilaris and the skin on my fingers often peels around my nails and finger tips.

Im massively stressed about it and feel like im wasting time when it could be being treated now rather than waiting another 10 days to see a doc! I really feel they don't understand Coeliac and its links and i just get fobbed off with random diagnoses each time.

I dont know anybody else who has coeliac so dont really have anyone to compare with..hence why ive took to the internet!

Anyone with any similar experiances??

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