Adrenal problem - medical bracelet info
Posted , 5 users are following.
Hi, I had a left adrenalectomy back in May and have been on hydrocortisone tablets ever since, gradually reducing. My left adrenal gland was removed because I had a benign tumour in there. This adrenal gland had been creating way too much cortisol and the right adrenal gland had shut down. Ive effectively gone from Cushings Syndrome to Addisons without all the side effects really. The tumour was discovered from an MRI resulting from investigations regarding high blood pressure. Anyway, the upshot is that my cortisol levels are now struggling to increase so it looks like I will be on the hydrocortisone for some time yet and I have been advised to wear a medical alert bracelet incase of an emergency. I have looked at these bracelets but I'm not sure what to have engraved on the disc. Does anyone else have one of these and if so, what do you say on yours please?
0 likes, 9 replies
kerry547 melanie09308
Posted
Hope this is some help although I know it is difficult!
melanie09308 kerry547
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sheltielife melanie09308
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melanie09308 sheltielife
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Disappointingly I have awful achy joints, fingers, hands, elbows and feet. They seem to think that my high cortisol levels may have been hiding a rheumatic condition. I am being tested for this. I'm hoping that it is not the case and a side effect of reducing steroids. I also have a hernia under one of the three holes where the surgeon went in to carry out the keyhole surgery so that is getting bigger too!!
Have you been having any side effects with the steroids at all?
sheltielife melanie09308
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melanie09308 sheltielife
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kerry547 melanie09308
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My daughter has just turned 18 and was 16 when she was diagnosed. She has been through and awful time and as a mother it is hard to watch!
We too have been told the cause is genetic and tests are still going on but as of yert they haven't found a link.
She too suffers with achy joints especially in her legs, and feels sick on a daily basis. Do you suffer with this? The fatigue is also bad and I just hope this will get better as our knowledge grows.
Its very interesting to hear of other peoples symptoms and if there us anything I can do to help her
sheltielife melanie09308
Posted
I forgot to say that my husband is now not long of death. He has been taken into a hospice and is on morphine. It eventually spread to his brain and he lost the use of his right arm and leg. We were supposed to be referred for carers, but it never happened! Typical of the NHS these days. I have been struggling to look after him on my own for a few months now and then eventually he was taken into the hospice only just over a week ago. No wonder I am struggling to recover, as lifting him on my own didn't help my arthritis either.
Mrs.Nicks melanie09308
Posted
I was diagnosed with Addison's 4 weeks ago. I just got my Medic Alert bracelet done. I have the following engraved:
Adrenal Insufficiency
Steroid Dependant
Hope this helps!