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Treating the consequences of Scheuermanns as an adult

Posted , 4 users are following.

Gibby2blaze
Gibby2blaze

Hello, I'm a newbie to all this but am so relieved to find other sufferers on here. I was diagnosed earlier this year as having had Scheuermanns as a child. I've had progressively worse problems since my early twenties and am now 36. Had years of tests, misdiagnosis etc. anyway, am here now and trying to find best ways of coping. The problem is the different types if pain. I get terrible stiff pain in neck, shoulders and ribs and sharp tender pain at the bottom of my back and buttocks due to damaged and bulging discs. I also suffer from sciatica down to my ankles at times. I've had co-codamol and recently Amitriptyline to deal with the neuropathic pain. I've now come off that and been given Gabapentin to start this week. I also do Pilates. Currently am signed off work for the second time in as many months. My question to start I guess is does anyone have a method they have found helpful ie drug combinations, complimentary meds etc?... Thank you! (Sorry so wordy!)

0 likes, 5 replies

5 Replies

  • dudydoo
    dudydoo Gibby2blaze

    Posted

    Hi,

    You describe many of the problems I experience. I do get a lot of problems and muscle pain, but I do pilates, gentle stretching exercises and visit a Chiropractor every few months which helps quite a lot. As for medication Amitriptyline didn't do much for me, Gabapentin gave me migraines but Lyrica (pregabalin) does help if you have a high dosage, but makes you feel drunk :-)

    • Gibby2blaze
      Gibby2blaze dudydoo

      Posted

      Thanks so much for that. I have read a little about pregablin. I've started the Gabapentin today and will see how I get on. Definitely want to try some kind of complimentary treatment too. Thanks for your input ;-)
  • tammy29174
    tammy29174 Gibby2blaze

    Posted

    There is a compound cream that I use.  It helps my back but works best on my legs.. Insurance does not cover it and it costs close to $100. You would have to call around for best deal because one place I called it was $500. I use office park pharmacy in Lexington, ky. They will ship it to you. I only use it when pain is real bad!  Here is a list of meds in it.....gabapentin 10%, Ketamine 10%, Bupivacaine 5%, Baclofen 3%, Diclofenac 3% and Cyclobenzaprine 2%
  • Lawyer
    Lawyer Gibby2blaze

    Posted

    Wedgewood: just seen your post. When you say you "had" Scheuermann's as a child, I guess you mean that the malformed vertebrae gradually worsened as you grew during adolescence. It is not a 'disease' but a consequence of our vertebrae growing incorrectly; producing the wedging appearance.

    The concept of neuropathic pain fits in with this. I was told you cannot say when or if it will go. Amitryptiline can be useful, although I found it made me feel dead, so I stopped. For me Bu-Trans patches are a big help; and use codeine when I have to. The patches provide a slow release over a week. 

    Certainly physiotherapy can help: both with mobility and to ease the pain.

    Keep talking to your GP and specialist. They should (and in my experience do) all they can to help. 

    • Gibby2blaze
      Gibby2blaze Lawyer

      Posted

      Thanks so much for your advice and sorry for ridiculously late reply!
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