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I had this condition un-diagnosed for many years its frequency has increased from once a year to twice a month or so. Eye drops such as chloramphenicol and chloromycetin make it worse. Chloramphencol ointment Chloromycetin ointment and Simple eye ointment seem to be the only treatment that works. I have to sleep on my back to avoid my eye burying into the pillow if I sleep on my side. To ensure I wake up and have no problem I have to apply a blob of chloromycetin and a line of simple eye ointment into both eyes at bedtime.
I don't really know where to go from here. Any successes out there?
0 likes, 17 replies
brin162 Dave_T
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I really feel for you, done all the drops creams contact bandages Just had a procedure called alcohol delamination and I can not believe the difference
Dave_T brin162
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I sympathise with you and the consultants too.
Marina_Dee Dave_T
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Last but not least have had punctal plugs put in to conserve any tears that I do make. Felt the difference immediately.
I now feel I am leading a fairly normal life instead always being laid low with painful erosions. Hope you have also found a solution...would be interested to know. Are you in UK?
Dave_T Marina_Dee
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you problem sounds horrific. I wish you all the best with it.
Dave_T Marina_Dee
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I have only just realise how to work this website !
Marina_Dee Dave_T
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I'm in Kent now but the major breakthrough came with my diagnosis when I saw a corneal specialist at Peterborough Hospital. Up til then I was always met with puzzled looks when I complained of pain in the eye. "nothing there" was the often repeated response to my frustration. Had so many tests for bacterial and viral triggers...and no one saw the erosions! Havent heard of alcohol delamination Brin but must mention it at my next appointment.
I also have glaucoma,another inheritance,but very well controlled and pressures stable for over 6 years now so consultant doesnt think any further deterioration probable. A retinal occlusion started all this off many years ago,treated by laser almost immediately luckily as I worked for the NHS at the time and was seen by the consultant as soon as I mentioned it to a colleague. Apparently this was the start of the Thygersons,according to an optician but having read up so much about it I realise I had been photophobic for many years,and always preferred to wear sunglasses even as a child.
You are so right that it is a lottery as to who you see and what they know about these conditions,especially the dry eye syndrome. A nightmare for so many people.
Do keep posting Dave,and let me know how things are going.
Yes,I suppose my condition sounds terrible but having found the right treatments for everything I now dont think about them too much and lead a normal life. Would love to go on a cruise but always put off by the "air conditioning" aspect. not good for dry eyes. Wonder if anyone with dry eye has any experience of this?
Sorry about the length of this,but sometimes its good to talk!
Dave_T Marina_Dee
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Marina_Dee Dave_T
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Dave_T Marina_Dee
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Marina_Dee Dave_T
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lindsay27401 Dave_T
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Marina_Dee lindsay27401
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lindsay27401 Marina_Dee
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Dave_T
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If I sleep wiithout applying simple eye ointment to both eyes I run a high risk of waking with a VERY sore eye.This lasts about 6 hrs during which I apply Celluvisc, which I also apply as required, this is the only way I can keep it under control. I have never used the contact lens " bandage". I would say try the simple eye ointment nightly and the celuvisc you can carry it wherever you go. Dont sleep with your eye buried in the pillow either.
Dave T
lindsay27401 Dave_T
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