POTs Syndrome? Call me Dr Goggle - GP thinks its aniexty?!

hello, as a practice nurse I would advise you to go to the surgery, next time you have the palpitations and see if there si someone to do an ecg on you. There are various reasons why you coudl be experiencing these but if your heart is racing , it needs to be treated and the heart rhythm recorded. I had a pateint who had 24 hr tape x2 over last week, nothing showed up as he had no palpitations, then last week came to us when he had it. We took ecg, he needed treatment and is now feeling mmuch better now he is on the right medication. Sometimes however people feel they have palpitations but infact the heart is beating correctly. You just need ot havean ecg when u have condition to be sure x

Hi Coggy,

Thank you for your reply. I had an ecg during an episode when the paramedics came adn they said it was abnormal - prolonged gap before the repolarisation wave (I forgot what that is - the t wave i think) and an absent u wave (which is quite common Im told) by the time I got to the hospital it was normal again. I ended up discharging myself as I sat for 3hrs behind a curtain with not a single person coming in. No follow up since.

Ive got an appointment at the start of may with a doctor to see what to do next ? Hopefully ill get some answers.

There is a support group for POTS patients on potsuk.org. In the 'pots for medics' section, there is a pdf printable guide for GPs. It may help to take this to your consultation. The last paragraph describes the 'stand test' which can be done in a GP surgery.

If your GP suspects you have this condition, they may refer you to an electrophysiologist (cardiologist with an interest in heart rhythm problems). There is a short list of doctors with knowledge of PoTS on the potsuk website and a longer list on the STARS website stars.org.uk (you need to register with STARS to access the list).

Good luck.

Midge

There is also this article patient.info/health/Postural-Orthostatic-Tachycardia-Syndrome.htm on patient.info which was written by the Stars organisation if it helps.

Emis Moderator.

Hi there. I'm 30 years old and a mother to two boys. I have been diagnosed with panic disorder since I was in my early 20's although I knew that wasn't it. In the last year, I was feeling all these symptoms coming on stronger. Im guessing they get worse as I get older. I met with me cardiologist a couple weeks ago and did a stress test and echo. When I went to get up my heart rate went to 124. He automatically knew what was going on. I feel like crap

Most of the time. Very tired, no energy, figit all of the time, dizzy sometimes. My Dixie prescribed me fludrocortisone and said to drink 2-3 liters of water a day plus my sodium intake needs to be 3,000-10,000 mgs a day too. I have good days and bad days. I just wish I felt normal again.