Henoch schonlein Purpura both daughters.
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Hi, my daughter has just turned 4 was diagnosed with HSP 8 weeks ago. I had seen the rash before as i will explain later so was familiar with what was likely to occur.
Fortunately so far my daughter is showing no protein in urine and has been relatively well in herself. She has suffered with swollen ankles, knees ,hands and face. The face swelling was particularly disturbing, and the mobility problems came and went over the weeks.
The rash went after 6 weeks, she had it very badly on her legs, they came up like huge hives, and on her arms and even ear lobes! She caught a minor cold last week and I am dismayed to see new rash on her legs again. Our paediatrician who has been fantastic and said it may come and go for 6 months or so?
As I said earlier I have seen it all before, my eldest daughter was diagnosed with HSP in December 2010. She was 8 years old. She came back from the Christmas disco with a few weird spots on her legs which I thought was an allergic rash. The next day her ankles looked swollen and my husband took her to a walk in centre. They had. I idea what it was so sent her to a&e. She was diagnosed with HSP. She was sent home with the usual paracetamol/ibuprofen. Unfortunately she was more ill than the youngest daughter. She too had swollen face legs and feet and we also took her back to a&e witha swollen spine which was very scary. Her mobility was affected for weeks which was an issue in itself as I would struggle to get her to the toilet as she was too big to carry. I can remember us both in a heap on the floor laughing!
She recovered from the main symptoms and remained protein free. She has complained recently of sore feet especially after pe at school and you can sometimes see that her knees and feet are a little swollen. Usually calpol solves this and she continues with swimming and dance as normal now.
Our paediatrician whom we had to see privately (as our GP hadn't a clue or interest in keeping tabs on this illness) has been fantastic. Very knowledgable and supportive. He said that it is just bad luck that both of them have had this. I think it's weird though as its supposed to be more common in boys and the chances of getting it very small so why twice in my family?
I wish anyone out there with HSP or HSP family members a speedy recovery. It seems it's different in everyone and it's annoying that no one really knows why this happens.
1 like, 3 replies
lucynewas Jmbug
Posted
becky40790 Jmbug
Posted
Hi, my five year old was diagnosed within the past two weeks with HSP with kidney complications. Unlike your circumstances, I have a team of specialist that monitoring her condition as well as have included her in a private medical study involving this disease. For now, she's stable as long as we keep up her meds.
I do have a question for you in regards to both daughters having it. Some sites say that genes can play a role in this condition and vice versa. Do you think genes played a role with daughters? I am asking because I have a two year old, and I'm scared that she may develop this same disease one day.
Jmbug becky40790
Posted
Hi Becky, I wish your daughter a speedy recovery.
In answer to your question, I really don't know. The paediatrician at the time had only ever come across one other sibling case in all of his years practicing. The only link that stands out in our case is that I paid privately to give both of my daughters the chicken pox vaccine. There is six years between my daughters so they were not vaccinated at the same time. Here in the uk that vaccine is not available on the nhs. They are the only two children I know vaccinated agsinst chickenpox in their school and the only two I know of who had HSP! The only thing is they didn't get HSP straight after the jab it arrived years later... Very bizarre. If I hadn't given them both the vaccine I would say genetics did pay a part but the vaccine situation would make me think that maybe this was the cause... Both are well now but as yet the eldest at 14 hasn't been given any other jabs as I want to avoid a repeat of HSP. I hope this helps.