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Has anybody tried anal irrigation for incontinence?

Posted , 3 users are following.

TRATON01
TRATON01

I have been incontinent for 20 years, and has a huge impact on mine and my familys life as I am practically housebound, I have had all the tests tried diet etc, I really only want to hear if anyone has tried peristeen or anal irrigation and if it is a success or not?

0 likes, 9 replies

9 Replies

  • susan44391
    susan44391 TRATON01

    Posted

    My goodness you poor lady. I have just been offered irrigation so will let you know how i get on. Have you never been offered a colostomy to give you your freedom back. You are a hero to have coped for so long. I have been incontinent for five years and it is ruining my life and having been diagnosed 3 months after retiring it was devastating.
    • TRATON01
      TRATON01 susan44391

      Posted

      Hi Susan, have you any joy with the irrigation? I really hope you have :-)
  • TRATON01
    TRATON01

    Posted

    Hi Susan, have you any joy with the irrigation? I really hope you have :-)
  • susan44391
    susan44391 TRATON01

    Posted

    I have just been to discuss Peristeen and am still thinking about it. Have you tried it yourself. Have you been offered a colostomy, it has been mentioned to me this week as well.
    • TRATON01
      TRATON01 susan44391

      Posted

      Hi Susan, I have never been offered a colostamy, they say because I have no serious medical condition that warrants this. I would of had one if had the option, however I had never heard of peristeen until March. I have had a massive battle with my GP to get this and she still has refused due to funding. The consultant at the hospital signed a consent form and they have given me a months trial free (coloplast). I had my training yesterday from the peristeen nurse at home. I will let you know how it goes, it would be better than winning the lottery if it works. I am scared if it works they will still say no to the prescription and you can't buy it either, not that I could afford it monthly anyway. I will update you, I am sure it will take me a long time to believe I could leave the house without panic, but I live in hope.
    • susan44391
      susan44391 TRATON01

      Posted

      I cannot understand why they do not see being housebound as a major issue. I am just starting to get so much anxiety that it has increased my episodes of diarrohea and accidents, i have an anal sphincter that has stopped working, no idea why, it just happened and i am devastated. I am being referred to a specialist at Southampton, just waiting for the appointment. I was asked if i wished to chat to people with stomas on my second visit to see my current Doctor, i was quite shocked. What has caused your problem if you do not mine me asking.
    • TRATON01
      TRATON01 susan44391

      Posted

      They have no idea, from bio feedback and other tests all they can conclude is I have an extremely sensitive bowel, soon as feel anything I need to expel it, why it started at 20 I have no idea. It is such an isolating condition. I know you too have had traumatic experiences, and my anxiety like yours is throught the roof. I will update you with the peristeen.
  • susan44391
    susan44391 TRATON01

    Posted

    Have been to see the Nurse this week to discuss Peristeen and am still thinking about it. Also a colostomy has been mentioned, have you not been given this option.
  • sandra2468
    sandra2468 TRATON01

    Posted

    Hello ladies,

    I don't know if this will help but I am also having problems with some anal accidents too.

    Has anyone had a proctogram supine MRI or sitting?

    If the womb and bladder are pounding at your pelvic floor stretching your muscles this could be a prolapse issue.

    Although may be once the anal sphincter muscle has been damaged it may be difficult to salvage.  

    Have either of you had a gynaecological opinion?

    Have either of you had a spinal, Pelvic, and sacral MRI neurography.

    I believe it is important to have collaborated opinions from neurologists, spinal surgeons,pheripheral nerve specialists, gynaecologists, and colorectal surgeons.

    Unfortunately this problem of anal incontinence is far more complex and within the structure of NHS funding becomes prohibitive.

    There needs to be a centre where by all the above disciplines come together.

    Incontinence should be salvaged at an early stage, and preventative monitoring should be targeted.

    Exercising the sphincter muscle is of  prime importance, however some of us cannot do this as the help or information given is often too late.

    Suffering from anal pain or obstruction feeling can prevent exercise.

    Faecal urgency, constipation which has been neglected can lead to further problems.  Diet plays an enormous factor in all of this and can probably give enormous help.

    If only the NHS funded tests for food intolerances and dietary advice.

    Keeping off dairy, sugar, wheat and eating a healthy diet is of prime importance.

    Many illnesses such as diabetes, colon related diseases, and some spinal conditions can be helped dramatically with the correct foods.

    I hope this posting may give 'food for thought'

    Sandra

     

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