Posted , 8 users are following.
Hi everyone, I have been reading with interest all your comments on here, everyone sounds as frustrated as I feel. Having been in terrible pain for 3 weeks and having a large mass in my abdomen.
I was diagnosed last Friday after a number of tests. I was given an information sheet, told not to eat grains, nuts, seeds, milk and take fybogel and paracetamol. I am seeing the GP today as I need more info. Initially I thought great, now I know what it is, I got a diagnosis, that's little use without a treatment plan. The more I read, the more confused I get. I am off work for a few days as I feel really unwell and the pain is like nothing else. Is this what it's going to be like?
A couple of questions for you....are you more likely to get UTI's ?
Would you recommend liquids only at a time like this?
Thank you for any tips or advice you could give a new sufferer
1 like, 18 replies
christine10242 pauline15533
Posted
I first got Diverticulitis in 2006 - a bad time; awful pain; two hospital admissions; very little advice, three bad bouts of D. Off work for weeks and ill for months. Antibiotics were Metronidozole (by drip when in hosp) and Cefalexin. then it seemed to settle down and I would have maybe two or three bouts a year. The GP gives me antibiotics to keep at home so I can take them as soon as bad pain hits....with this condition everyone seems to be different; and the bouts arrive in a differeng guise. Sometimes you get twinges and twangs anyway but that is just the nature of the beast and does not mean it is a bout of infection. Sometimes it comes with a temperature and aching limbs. Other times it just arrives. I had very little advice and my mother paid for me to see a Dietician. No seeds; nuts, pips, skins (fruit skins or potatoes) and no pulses (those skins again). I have had contradictory advice from doctors; but having seen a hospital consultant yesterday he cleared up some of the advice. When you have pain and inflammation; follow a low fibre diet; white bread; white rice etc - or a liquid diet of clear broths when really bad. But when the inflammation dies down and you feel normal (and you will feel normal again!)....then it should be a high fibre diet - and include Fybogel in case you are not having enough fibre. The most important thing he said was to keep the gut working and moving debis through; not getting a back up/back log. Consitpation and straining is the LAST thing to let happen; as the weakened gut will just make more pouches as you push and strain. He re-iterated the no seeds, nuts, pips, skins thing. I have learned that my gut cannot cope with garlic; just a little and I am in pain within a few hours - not an infection but it hurts just as much for about 24 hours til the garlic has cleared through. Some people say onions do the same thing; even a tiny piece. Lucky I seem to be OK with onions. I have heard people say they would rather have six child births than this condition; It is SO painful. Never had kids myself so don't know; just now its BBBB grim. Stress seems to make it worse as your body becomes less able to cope with bacterial infections etc if you under stress. My partner died last year and I have been VERY ill for months; nine bouts since November - hence the specialist yesterday. My e mail address is ______ if you want to e mail me directly in case I cannot find this formum thingy again.
Trust me; I KNOW what you are suffering. Kind regards, Christine
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pauline15533 christine10242
Posted
Thank you and take good care
christine10242 pauline15533
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pauline15533 christine10242
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I Hope your good period continues...long may it last.
I will look for private message thingy lol.
All the very best
P x
vivian89329 pauline15533
Posted
I am sorry you are dealing with this The pain is brutal and the ill like feeling worse.
I have been on antibiotics 4 times this year.
I lost a lot of weight. A good diet is essential. However you need to avoid a circle. Going from very loose bowels to constipation. I was off work for 5 weeks and just started back last week. However I just took a mild laxative to avoid back up and infection as the constipation is kicking in.Someone on the forum said that aloe vera juice is very good. I am buying some tomorrow. A hot water bottle helps me as well. Also herbal tea.
Vivian
pauline15533 vivian89329
Posted
That is interesting about the aloe Vera juice, do you know anymore about it? Strength, dose etc., sorry questions questions!
I really appreciate you sharing your tips and advice.
Thank you
P x
madge07350 pauline15533
Posted
pauline15533 madge07350
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As for the UTI'S I have been having them every few months since I was 6 mths old...im now over 50!!! They've never been able to find a definitive reason for this although a nurse friend tells me with my new diagnosis, I could have had a problem with infection spread for a while. Oh the joy! Thank you again Madge I'm off for a GP'S appointment now....wish me luck
madge07350 pauline15533
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pauline15533 madge07350
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diva62 pauline15533
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I had the surgery on June 12 and it is the worst! I experienced a lot of pain and then your bowels have to realign . I am still at home with pain
pauline15533 diva62
Posted
Kindest wishes
P x
christine10242 diva62
Posted
Myredmolly pauline15533
Posted
christine10242 Myredmolly
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christine10242 Myredmolly
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pauline15533 Myredmolly
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It's been nice to hear from you and I hope your holiday will be restful for you and help in your recovery.
P x
madge07350 Myredmolly
Posted
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