1. Community
  2. Eyes
  3. Eye Problems

Please help ( advice needed for my daughters eye problems )

Posted , 2 users are following.

kelly99504
kelly99504

My daughter is 11 now. She has had problems with her eyes since approx 6 months old. I will try my best to explain what she does and what help we have had so far . I first took my daughter to the doctors when she was 6 month old as every time I took her out in her pram she would scream and screw up her eyes I soon realised that the problem was daylight / sunlight . The doctor referred her for tests . They sent her to Manchester hospital where thet put her under anasphetic to examine her eyes . ( no result found ) I asked for second opinion and was referee to Liverpool holiday for the same procedure . ( again no result ) they said maybe as she grows this problem will resolve but this is not the case it has got worse . She now walks around with her right eye almost shut if it's bright / windy sometimes she can be just sat at the dining table ea ring and she will drop her head and be squinting and struggling to see . We ask her if she is in pain or is something wrong and she doesn't know how to describe the problem . We have no photos of her looking direct at a camera or with her eyes wide open . I really don't know what to do next . She starts high school in September and I'm worried she will be bullied . But aside from that I KNOW there is something wrong but how can I convince the doctors and specialists .

1 like, 3 replies

3 Replies

  • mrsmop
    mrsmop kelly99504

    Posted

    I have just had a quick look for any suggestions on the cause of photophobia [your daughter's problem] in children.  I'll send you the link I have found but it does mention 'corneal abrasion' and says the following

    The diagnosis of a corneal abrasion was made. A topical anesthetic was applied for patient comfort. A topical antibiotic ointment was also applied and the eye patched. Thepatient’s clinical course showed her going home and sleeping. She kept the patch on for an addition 2 hours and then took it off just before bed and was not complaining of pain or photophobia. Her ophthalmological examination was normal the next day including no evidence of corneal abrasion on fluorescein dye testing.

    It could be that even if the problem has gone away, your daughter has become so used to being photophobic, that she doesn't contemplate not being photophobic.

    Have you tried giving her sunglasses, being careful to check that they offer uva and uvb protection?  Buying them in somewhere like Specsavers is a good idea.  And also give her some artificial tears, dry eyes can cause photophobia.  Even try suggesting that the artificial tears might 'cure' the problem, in case she is just expecting to be photophobic.  

    She has obviously been well checked.

     

    • kelly99504
      kelly99504 mrsmop

      Posted

      Hi John,

      We recently went to the royal Manchester eye hospital with our daughter I thought I would let you know the findings and the plan of action.

      Megan first had a regular sight test that showed a slight prescription in the right eye . They said that the doctor would decide if our daughter needs glasses or not . We then went through to see doctor who had a further look in to her eyes and found what she called a spasm behind both eyes . She then asked if we felt there was anything wrong with daughters eyes I have done some research on a few things u mentioned and also came across a condition called Marcus gunn jaw winking syndrome which by itself does present the problem she has with her right eye . Basicly the right eye winks when her jaw moves at the same time . The doctor confirmed that our daughter does in fact have marcus gunn jaw winking syndrome but she also has other problems . Because of the marcus gunn jaw winking syndrome she has to have a brain scan as typically the syndrome is present at birth and In our daughter they have to presume that it wasn't as we only noticed this about 1 -2 yrs ago. Hopefully the brain scan will be fine but as you can imagine we are a little apprehensive. She now has to wear glasses too as the doctor felt this would help to sharpen up the vision in the right eye . We now wait for the appointment for the brain scan and see what that shows . The treatment for marcus gunn jaw winking syndrome is a operation to cut the nerve from the eyelid and re attach to the forehead this is a big operation and one they do not like doing if only for cosmetic reasons so unless the op needs doing to prevent sight problems or anything medically then the operation will not be done . Kelly

  • john10046
    john10046 kelly99504

    Posted

    I have had the same problem for many years,diagnosed as slowly progressive Uveitis and resently linked to the HLA-B27 gene and ankyloising spondylitis,although all blood tests are normal.

    It may be worth a visit to a good Rheumatologist.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.