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Need consoling from my PMR group

Posted , 13 users are following.

LayneTX
LayneTX

hi y'all as we say in Texas... I was telling you the Prednisone was making my esophagus irritated, and my Thoracic spine hurts, I thought from leaning to pick up something in car...

Rheumy had me get chest X-ray and spine...

they just called...

said I show moderate COPD and some Osteoarthritis in spine.

I do NOT smoke, I hate cigarets , I avoid people who smoke like the plague!!!  

Can the PMR be related? Did it show up because of my new issues?  

Last year I did tell primary doc that my throat sometimes feels like feathers, she laughed at me.  We assumed allergies.

oh, how I hope they are wrong.  I have call in to primary now.

i just want to cry.  I'm 54. Always been healthy. I don't caugh, I don't live in bad environment, in fact I live in the country, away from cities!

i did take up pastel painting for 4 years, but didn't do it much.

I could use some hugs. I'm scared. 

2 likes, 18 replies

18 Replies

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  • jillyy1955
    jillyy1955 LayneTX

    Posted

    Am sending a hug I have been suffering with my throat for weeks getting worse and having trouble swallowing never thought to connect it with my pmr
    • LayneTX
      LayneTX jillyy1955

      Posted

      Apparently corticoid steroids can increase yeast infections and the candida CAN affect or get in our liver and lungs!!!!  My Rheumy also said my liver levels were elevated, and now I have Thrush in my mouth.

      my sister said doctors don't know much about Candida/yeast.  

      I just hope its reversible.  

      wonder if there is a forum here for that?  I'll look. Thanks for cyber hug!

    • tina-uk_cwall
      tina-uk_cwall LayneTX

      Posted

      Layne, both PMR and steriods can result in elevated liver results. In my case every single blood test taken pre and post diagnosis have resulted in elevated and odd results. My Dr is obviously concerned but until I'm on low levels of preds and this immune condition is in remission they are not panicking unless the results worsen and whilst I'm feeling ok I'm not overly worried.

      i'm sure there are drugs for thrush and other yeast infections. Look up thrush online and speak with your Dr about possible medication.

      regards, tina

  • claudia75644
    claudia75644 LayneTX

    Posted

    so sorry that you are suffering through this dilemma....Hope you will soon feel better. 
  • claudia75644
    claudia75644 LayneTX

    Posted

    HUGS TO YOU BOTH.....HANG IN THERE, AND HOPEFULLY A CURE WILL BE FOUND FOR YOU.....
  • tina-uk_cwall
    tina-uk_cwall LayneTX

    Posted

    Hello layne, of course at this moment in time you are feeling scared regarding this recent diagnosis.

    along with the hugs I'm sending, I also want to say that this diagnosis is not all doom and gloom. I've looked up copd and sometimes this condition can be the result of genetics and not always smoking and environmental factors.

    you have only had an x ray and there are many lung conditions that can cause shadows on the lung. They may want to perform a further test whereby you breathe into a tube, the result of this test may help with a more conclusive diagnosis.

    copd cannot be cured but the condition can be helped with treatment and medication so please don't panic.

    It's easy for me to tell you to calm down, have all the tests and then take it from there because I would be scared too. Please keep us in the loop regarding tests and results.

    hugs and kisses, tina

    • LayneTX
      LayneTX tina-uk_cwall

      Posted

      Thanks Tina!

      i even read if someone has a lot of mucus, it can get inhaled a lot and over time create damage in lungs... I do think I have a lot of that. I've often woke up choking when I first had PMR and it hurt to sleep on sides so I slept on back when I could sleep, ha! 

      My my mom was adopted so I don't know her genetics, bummer. But she has RA and genetic ear tumors.

       

    • tina-uk_cwall
      tina-uk_cwall LayneTX

      Posted

      Layne, I've just looked up oral thrush and there are plenty of medications used to clear up this condition that is common for those with a weaker / weakened immune system which we have due to the preds that lower our immune system.

      get your Dr to prescribe some medication soon to help get it under control. Also use chlorhexidne mouth wash to help keep oral thrush at bay.

      Yes thrush can spread to the lungs and liver but only in extremely ill patients, so don't worry. Just get your Dr to prescribe some medication and I'm sure that will relieve your anxiousness.

      back to your lung query. Yes, even chronic bronchitis can result in copd as can bronchitasis, spelt wrong! My mother had that and actually lived with it for most of her life. She died aged 83 from peritonitis due to bowel cancer!!!

      regards, tina

    • tina-uk_cwall
      tina-uk_cwall

      Posted

      Sorry layne, I got that wrong. I don't think my mother died of peritonitis? Her bowel perforated which I think is different. Regards, tina
    • LayneTX
      LayneTX tina-uk_cwall

      Posted

      So sorry about your mom.

      I've never even had bronchitis.  I don't cough...

      I'm taking anti fungal for Thrush...Nystatin. 

      I had chest tighness from beginning on Prednisone, 20 mg was highest. 

      Doctors weren't concerned. I was. Ugh. But thank you for your words and sharing. 

        Layne

  • pat38625
    pat38625 LayneTX

    Posted

    Layne Many ((((((((((((Gentle Hugs))))))))))))  Regards Pat
  • faye______00403
    faye______00403 LayneTX

    Posted

    I was diagnosed with COPD about l6 years ago and I did smoke

    for years.  So....no surprise there....however I just use two inhalers

    and it hasn't gotten any worse so if they think that see moderate

    COPD it isn't hard to live with.  Hopefully they are wrong but you

    can live with it for many years.

  • FlipDover_Aust
    FlipDover_Aust LayneTX

    Posted

    BIG HUGS Layne. Have a cry.... no point trying not to. Might even make you feel better afterwards :-)
  • patricia59727
    patricia59727 LayneTX

    Posted

    Hi laynetTX I smoked for 40 years up till 2 years ago and have mild COPD I only have to take one Inhaler on a morning and hardly ever Cough.I have been having a spoon full of Manuka Honey and Bio Live Yeogurt on a morning as I was having a problems with Irritating Esophagus,This seems to be working up to now.Regards and don't worry stress is not good for us PMR people, Look after youself. Patricia
  • margaret22251
    margaret22251 LayneTX

    Posted

    dont be scard, sending lots of hugs, you will get lots of them on this site, and lots of help.

    People will be along soon

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