Sjogrens
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i have had sjogrens since I was 41 years old, I'm now 74 . I've been told there's nothing can be done for it, it's just as I've got older I ache more and get extremely tired,I do go out walking with my dog to get some exercise, have a sit down , then do a few jobs , then sit down and so forth , sjogrens is not life threatening, but it changes your life completely .but it's nice to keep in touch with people who has this horrible conditition . I wish you all well, your not alone.
0 likes, 21 replies
mandy95 maureen42261
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maureen42261 mandy95
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pam_87693 maureen42261
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kandypat maureen42261
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maureen42261 kandypat
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Sue1247 kandypat
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PJAngel maureen42261
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maureen42261 PJAngel
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lily65668 maureen42261
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My main problem at the moment is that I had a nasty fall when I got dizzy on a down escalator a couple of months ago, and ended up in a heap at the bottom going onto those metal teeth - one of the scarier moments of my life. Nobody had the sense to stop the escalator but two young lads just grabbed an arm each and hauled me off. I'm eternally grateful to them, and was absolutely fine for a couple of days, but then started getting hit by joint and muscle pains all over my body. Most of them have gone now, but I've been left with a severe flare-up of RA in my left thumb joint, which is affecting my grip and making it difficult to do all kinds of household tasks (and I live alone).
On the bright side, I've always found that most pains of this kind get better if I wait long enough. I'm also taking a combination of homeopathic remedies I was prescribed when I had my first (and most crippling) attack of RA when I was only 35. I'm not on any special diet, though interestingly I find I've been going off wheat products for about 10 years now, and rarely eat bread or breakfast cereals these days. And cakes and biscuits aren't a temptation since I've never had a sweet tooth. Apart from that, I just avoid the main triggers for my RA, identified by the homeopath 35 years ago - chocolate, coffee and rhubarb. Unfortunately I love rhubarb! I also eat 6-7 portions of fruit and veg (but mainly veg) per day and oily fish at least once a week, as well as taking an omega-3 fish oil supplement every day. I've been taking this religiously ever since I hit the menopause 25 years ago. I make sure I get regular exercise - by walking, like you - but only up to my limits. I sometimes get a pain in my knee, so on those days I limit myself to just a 15-minute walk. The trick is to keep doing enough exercise to keep your joints flexible, but without damaging them when they're inflamed. Sounds like you're doing exactly the right thing there.
I suspect part of the problem is our modern attitude to ageing. We think we're still supposed to be running around like spring chickens in our 70s, whereas just a hundred years ago most of us would probably already be dead by now! I remind myself of this every time I get a bit frustrated by my limitations. There's nothing wrong with accepting our limitations, as long as we don't let them totally take over our lives.
maureen42261 lily65668
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kandypat lily65668
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aveline maureen42261
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Reading your post, I have to wonder if you have Coeliac Disease, too. Please don't eliminate gluten from your diet, but rather speak with your doctor and get the blood test for it. Auto-immune illnesses tend to come in multiples. You could have rheumatoid arthritis or coeliac disease or perhaps another condition which is complicating your sjogren's (and your life). Knowing if there's another problem may point to another remedy of some kind that can help!
I have low B12/Pernicious Anaemia and that brings on fatigue like you mentioned. It's an awful way to live! You may want to see about your B12 levels, maybe iron and other levels as well, too. Hugs to you, Maureen!
pam_87693 aveline
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pam_87693 aveline
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maureen42261 aveline
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