My Endocrinologist said that my Thyroid may correct itself and I will need little to no medicine?
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Recently I was hospitlixed due to Tachycardia. While I was there I told them about how I had Graves disease, how I was diagnosed at age 12, my Thyroid spikes in the summer, and how of I am 15 now.
I was taking a pretty low amount of Thyroid medication 50mg of Levothyroxine 5 days a week and 75mg 2 days a week. This was by my Endocrinolgist's orders. I didn't kmow that I became Hyper, I felt Hypo on 50mg and I think looking back I was becoming Hyper on that too.
They only tested my FT4 and TSH at the hospital. My FT4 came back as 4.07 and my TSH was 0.1. Literally the ER doctor came in and said, "Well we tested your TSH and it came back as 0.1". I thought she was crazy and asked her to test some other things, she said Free T4? I said yeah.
My Endocrinolgist I think does T3, Free T3, Reverse T3, T4, Reverse T4, Free T4, TSH, and Thyroid Antibodies. Just my guess, but when I started treatment 3 years ago he said there was a 20% chance of my Graves disease ressolving itself because of my age. He's in his mid 80's and my mom and ER doctor recommends I find someone else, but does he have a point?
I was also getting Hyper on 50mg of Levothyoxine 6 days a week.
0 likes, 13 replies
ashley51986
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The only way my head can wrap my mind around this outcome is if I start becoming Hyper on such little amounts of Levothyroxine. Which I am. My great Aunt takes 112-125 mg of Levothyorxine.
I go see my Endo Tuesday. They told me to lay off of the Levothyorxine, stop taking it completely and I feel FINE. It has almost been 3 days. I am also o Propanolol to contorl my heart rate. Let me say SO MUCH BETTER THAN ATENOL!
linda187 ashley51986
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ashley51986 linda187
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linda187 ashley51986
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ashley51986 linda187
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linda187 ashley51986
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victoria08838 ashley51986
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What I can say to you is that YES, it is possible to go into spontaneous remission, my son is living proof of this. He had 2 months of being weaned off all medication, then had to go for 6 weekly blood tests. After 3 consequtive good blood results he was declared to be in remission. He had a follow up blood test a year later and he was still fine. He is now 25yrs old and has remained in remission. We were told it could come back again at any time but fingers crossed, nothing so far.
christine57219 victoria08838
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victoria08838 christine57219
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Yes, it is usaul for a Grave's disease patient to be given Levothyroxine and carbimazole, My son was given this combination. He was seen by a specialist at Kings College Hospital in London. He was quite clear that my son should be weaned off Carbimazole over 2 to 3 months with regular blood tests.
He reduced the carbimazole BY 10mg a day for a 3 week period, followed by a blood test, each time the blood test result was normal we reduced it by a further 10mg for a further 3 weeks.
Very few GP's know how to treat Graves disease.
I hope this helps. Please come back to me if there is more you'd like to know. But please go to your doctor ASAP.... a thyroid storm is a bad thing and will cause the symptoms you describe.
christine57219 victoria08838
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victoria08838 christine57219
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The symptoms of extreme tiredness, anxiety, feeling cold etc are all symptoms my son had. He was sleeping 22 hours out of 24 hrs at one point. The consultant said my son would be feeeling as though he'd run a marathon when he woke up. It was a horrendous time.
Yes, my son was only on his medications for about 3 years, the consultant had said that in his experience boys of his age ie going through puberty, went into spontaneous remission after about 2 years. We had to remind him of that and ask for my son to be able to try stopping his medications and as I say the consultant said the carbimazole had to be reduced slowly over about 3 months.
I hope you've seen your doctor now and he's listening to what you're saying. Good luck Victoria
linda187 ashley51986
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jean26847 linda187
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I just been diagnosed with hyperthyroidism based on suppressed TSH .. I am extremely frightened... I know it’s been a while you were active at the site... while I am hopeful, that your issues have been resolved, I am also hopeful that I will be hearing back from you.
Thank you !
PS. I am willing to share my telephone number with you, if either you would call me or you will provide your number.