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PMR and High Lipase Levels

Posted , 4 users are following.

pam7653
pam7653

I have had PMR since 2011 but it was not treated until 2013. In 2013 I had extreme heartburn and chest pain that sent me to ER. I had been taking ibuprofen for joint pain not knowing I had PMR. My exam showed nothing except a high lipase level of over 500

Further exam by endoscopy for a hemangioma on my liver showed 2 small cysts in my pancreas. I have no symptoms of any kind now for 2 years. I was told to follow up in 2 years with another endoscopy.That test is coming Sept. 2. My lipase is still high.

Not sure if any of this is related to the PMR. has anyone else had anything like this? The doctor seems clueless.

0 likes, 9 replies

9 Replies

  • jo42444
    jo42444 pam7653

    Posted

    Good morning from Canada. When i was first diagnosed with Pmr they did many tests and found a spot on my pancreas and a spot on my liver they seem to have concern only for the liver and have made an appointment to see a specialist. The appt is dec 15. I dont have any symptoms of liver disease and my Gp says not to worry its probably nothing. I dont know i it has anything to do with PMR maybe the specialist can answer that question. I do worry but then remind myself that i have no symptoms. Joanne
    • pam7653
      pam7653 jo42444

      Posted

      Thank you for your response! I'm sure this scared you like it did me. I also went thru a battery of tests. Gall Bladder tests and endoscopy. The endoscopy showed the pancreatic cysts, they didn't show on the MRI. The hemangioma (collection of blood vessels) showed in 2011 on a CT. They just let it go because I was having thyroid issues and said it was likely nothing. I could have had it my whole life. The part that gets to me is every time they find these cysts or see my Lipase level on my pancreas they ask me of I drink alcohol in excess. Well, I'm not a drinker. Maybe one drink a month. They look at me like I'm lying.

      I had extensive blood work in 2011 and I don't remember if they checked my lipase levels. Nothing was said. I'm just curious if PMR and this was related. I'll keep you informed after this endoscopy on Weds. They're checking the cysts to see if they've grown since 2013.

    • Mrs.Mac-Canada
      Mrs.Mac-Canada jo42444

      Posted

      Hi Joanne,

      I don't have these issues but they sound very scary and I hope both you and Pat get some feedback from others on the forum that may know about it.

      I'm wondering where in Canada you are.  It would be great to actually talk in person to a fellow PMR'er.

      I live in Pitt Meadows, BC

      Hugs, Diana🌸

    • jo42444
      jo42444 Mrs.Mac-Canada

      Posted

      Im in Tyrone Ontario and would enjoy speaking to another PMR'er. Im. Not sure how to exchange info

      Joanne

    • jo42444
      jo42444 pam7653

      Posted

      I suspect they will be checking me also in Dec to see if there has been any change in size. This will be the third MRI and sadly the testing and waiting for results seems to get easier. I hope all is well with yours.

      I will post my results in Dec ad well.

      Joanne

    • tina-uk_cwall
      tina-uk_cwall pam7653

      Posted

      Hello Pam, before my diagnosis in December 2013 I underwent a barrage of tests because my GP had no idea what could be wrong with me. I had an endoscopy and they discovered a sore in my stomach right at the entrance where it joins the food pipe. Then following an ultrasound they discovered a polyp on my gallbladder, luckily less than 1cm. Then where do I begin re my liver! I have been diagnosed with non alcohol fatty liver and at the moment placed on the "nothing to worry about list"! There is also a question about auto immune liver condition because like you my liver blood tests are always up and down and have never since just pre diagnosis been good. But I have been advised that these results could simply be because of the fatty liver.

      i am 3 stone over weight and I believe that this is not good for my liver. I am now down to 7.5mgs and I hope that as I lose weight and reduce further down the preds some normality will be seen in my liver results. As for the polyp, they will ultrasound me every 2 years to see for any changes.

      i obviously hope that I do not have auto immune liver condition and quite honestly I don't believe I have got it. I display none of the symptoms. Like you I hardly ever drink, infact my last drink was a glass of champagne at Christmas. But the liver specialist did say that non alcoholic liver disease can be inherited although I don't ever remember my mother suffering from it.

      i'm sorry I can't help you with the lipase levels as I know nothing about that. Do I think any of these is PMR related? Well I don't think the PMR caused any of these things as I was diagnosed with these problems prior to my PMR, but could any of this caused the PMR? Well I'm out in that one other to say that I do believe that stress has a huge part to play in this condition and I don't mean simply mental stress, I mean physical stress and if your internal body is not quite 100% then surely that's stress on your body too! We'll see. Good luck Pam. Regards, tina

    • pam7653
      pam7653 tina-uk_cwall

      Posted

      I'll keep you informed on my endoscopy results this Weds 9/1. I'm praying they're gone from my pancreas, but I doubt it if my lipase level is 500+.

      The look they give my when I say I'm not a drinker. They seemed to say, yeah right!!!

      My mother was quite a drinker, makes you wonder. rolleyes

      Pam

    • tina-uk_cwall
      tina-uk_cwall pam7653

      Posted

      Pam, funnily enough so was my grandfather. He died of liver damage in his 60's.

      yes, do let us know of any further developments. Regards, tina

    • Mrs.Mac-Canada
      Mrs.Mac-Canada jo42444

      Posted

      Hi Joanne,

      You're a bit to far away to have coffee with I'm afraid😉.

       Maybe we should start a discussion that gets everyone in certain areas to respond.  We can private message those that live close to us and arrange to meet.  

      I'm right now but will do that I think when I get home.

      Hugs,  Diana🌸

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