I'm feeling a bit of a success right now!
Posted , 6 users are following.
I know it's early days but I can't help feeling that thys thyroid journey is not going to be as pasinful as it first seemed.
I have Graves, they think, they keep changing their mnds. But I was pressured in to thinking about RAI - I told them politely to sod off. Then they wanted a full block and replace starting at 40 mg Carbimazole, which I intially took - not realising that that was a B & R dose. Well Carbimazole seems to me my thyroid's kryptonite & it decimated the numbers: A FT4 over over 100 to 26 in 30 days (with me halving the dose half way through that time period). I had a moment and refused to take it for a while and my hyperthyroidism came back with a vengance, my endo and I avoided an impasse and I promised him I would take 15 mg daily for 4 weeks, which I did - the results are right in the normal zone. He has reduced my dose to 10 today and I'll see him in 8 weeks...I predict going slightly under but I feel so in control of this thing that I'm not worried, I know I can drive the lab results by adjusting the dose and I'm feeling fantastic.
This is just a pep talk for those out there who are feeling pressured by their doctors to do something they don't want or need more time to think about, trust your own body and your own sysmptoms - because they are so varied in different people and only you know what is normal for you.
Good luck peeps
Elise x
0 likes, 15 replies
emily28486 Elise888
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the next option was RAI which I thought hard about and have refused so doc is tweaking my meds at the moment and I feel ok now suppose it will be until I come off the meds Probably in a year then take it from there. If I have a relapse I will think again about getting RAI but wanting children next year or year after, so don't know. X
emily28486 Elise888
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Elise888 emily28486
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alice_in_wonderland Elise888
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Elise888 alice_in_wonderland
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linda187 Elise888
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To the lady who is happy with her RAI, she is in the minority and I wonder how she will feel in 5 or 10 year's time. In my opinion, I would not destroy a body part unless there was a malignancy and I had to. Your own thyroid produces T1, T2, T3 and T4 and it is only replaced with synthetic T4 when you lose your thyroid.
Nonita Elise888
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emily28486 Nonita
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Elise888 Nonita
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veronica28452 Elise888
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linda187 Elise888
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sandra94977 Elise888
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sandra94977
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Elise888 sandra94977
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I have a pregnancy-like craving for peanuts and eat them by the tonne daily - which depending on what you read helps or ramps up your thyroid!
I still feel really well, but constantly fighting the weight gain - kept it at plus 6lbs so far.
I'm really pleased something is working for many of us. Linda I didn't realise that the thyroid produces that many other hormones!
I just don't get why the standard medical response is so violent to be honest.
veronica28452 Elise888
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