1. Community
  2. Bones, joints and muscles
  3. Sjogren's Syndrome

i cand breath my sinus is every day clogged

Posted , 4 users are following.

suncat
suncat

one week started dry will this go away i cant survive with this..I can haandle anyhing thisisscary tried evry thing...dry mouth  please help not diafdnosed yet brain fog head  neck painlastnight ears start to plug up.  need to gain th eweight i lost10 lns  Sheila  thank you for all support

0 likes, 25 replies

25 Replies

Next
  • jean34329
    jean34329 suncat

    Posted

    Listen to me.

    I feel petrified.

    I am the worlds biggest coward and I have this horrid disease . I thought that I would never get through the day because of the headaches, the throbbing pain in my right eye in particular, the burning, the loss of appetite, I could not eat anything without having a glass of water to drink. in fact I keep a glass of water here at the side of me  all the time and take sips. I also have a glass of water at the bedside as well that I can refill during the night.

    The dr advised me to keep sippingbwater , she said it is better than having a glass every hour or so. because it helps to flush the body of toxins.

    I have peripheral neuropathy as well. It is scary but we are here to support and help you through this.

    You must tell yourself tht you are going to be alright. You have to be positive. Hard to do , easy to say.

    However this anxiety is part of the disease/condition. It will ease with the pssage of time, you sound as though you atre having a flare up. It will pass.

    Trust me you are not alone in this. We are here to help youand this helps us in turn to cope.

    Jean

     

    • suncat
      suncat jean34329

      Posted

      tHANK YOU MY FRIEND I HAVE A LUMP N MY THOAT WITH BUNINGCAN YOU TAKE NEXUM WHAT IS THIS I JUST STARTEDNOTEVEN A WEEJK GETTING THIS  WHATCAN I DO WHAT SHOUKD I TAKE  I LOST 10 LBS  I NEEDTO EAT AND  I JUSTDID AND IT CAMNE BACK??????????PLEASE WHATMEDS?????????
    • jean34329
      jean34329 suncat

      Posted

      I have just seen your mssage because I have just logged on. You should contact a doctor or an ambulance urgently if u are having breathing difficulties.

      Are you in the UK?

      Kind regards

      Jean

    • suncat
      suncat jean34329

      Posted

      Jean what kind of nuts??ewhere do Igetnasakspray saline isnot working well...I muthis still dry and sometimes sore do you think its the tap water///////im  inneed ifmedicineAndtheDoctor rheumatologist is not working for me  thank you .ieat food and mouth ggets dry or  acid reflux

      i should gtake nexum???

       

  • sally83545
    sally83545 suncat

    Posted

    Hi Suncat,

    I know you are feeling bad and your anxiety is taking the upperhand. Anxiety and I are very well aquainted. If you can, I want you to sit quietly for a moment and try to take a couple of deep breaths in and out concentrate on focusing on your issues one at a time. Ok you are dry, one of the side effects of meds like Lexapro is dry mouth I assume that if it can dry your mouth it can contribute to drying everything else. When you get your diagnosis and you start treatment alot of these issues will start to subside but until then try to treat them individually.  I would suggest continuing with the Saline spray often through the day(I do).

    Have you tried Biotene spray for your mouth or a product similar it really helps and lubricating drops for your eyes (I keep all these products close by all day) That is the reality and you can do this. Brain fog is a pain! Anxiety causes it as well, so at times it can be embarassing and frustrating (menopause compounded both these for me) and the anxiety of waiting for a diagnosis. How long have you been on the Lexapro? Did you check to see if some of your symptoms can be side effects (headache pain,weight loss) sometimes medications like Lexapro can actually have anxiety and nervousness as a side effect so if you noticed that you are feeling more nervous since you have started taking it maybe a conversation with the doctor is in order. I tried Lexapro and it didn't work for me . Or maybe your dosage needs to be adjusted Anti-Depressants and Anxiety meds unfortunately have to be monitord and adjusted to receive the best benefit. You are in control of this you need to be very upfront and honest with your Doctor and read what you can about each drug I also read patient blogs on drugs I am taking it helps to know what other people experience. Stomach issues are common with SS and Side effects of meds plus if you are trying to gain weight you may be eating differently and that may cause issues. I used over the counter meds until I went and was diagnosed with Gerd then I had an RX. After my diagnosis and started on the Plaqunil my stomach improved and dont have to take the RX anymore. You can deal with heart burn it is annoying and painful but you can do this. Also Ibuprofen can irritate your stomach so watch what you take for pain. I know it can all be overwhelming take deep breaths and try to keep in mind this is not a runaway train you have the smarts and the resources to deal with all these issues. Feel better,

    Sally

  • shira75032
    shira75032 suncat

    Posted

    My sinuses are clogged as well.

    Have you tried some serious decongestants?

    Also saline spray for the nose may help some.

    What caused you to lose the weight exactly?

    • suncat
      suncat shira75032

      Posted

      STRESS  IC BLDDER AND RIGHT NOWTHROAT ISSOREN DYR AND CANT ET A LOT I WANT TO ...IM NEW TO THSI AND USEDT EQTING GRETA MEALS...DO NOT KNOW WHAT I CAN DO MY SINUS WONT CLEAR DECONGESTIAN DRYING AND MN=I NEED MISTURE ,THIS IS HORRIBLE AND PAIN A LOT IN HEAD NECK MOSTLY  I NED A GOOD R HERE GOING BACK TO LA IM IN AUSTRLIA  THANK YOU MY FRIEND

       

    • jean34329
      jean34329 suncat

      Posted

      Suncat

      Please get some hot lemon and honey for your throat.

      Phone for a dr and tell him how anxious you are.

      Is there a dr nearby?

      Are you living in Oz?

      Stop panicking.

      Panic attacks are part of this syndrome. You must ring for a dr.

      You may need some simple decongestants. Have you go asthma? Have you got sinusitis? Do you have migraines? Are you taking codeine?  Kind regards]

      Jean x

       

    • jean34329
      jean34329 suncat

      Posted

      Suncat Is the climate too dry for you? Have you got air conditioning tat is making things worse? Are you allergic to any perfumes, plants, fllowers etc?Have you been in an environmnt that has pain in it or any chemicals? Cookiing smells can cause these siigns and symptoms as well. oook at your neds and their side effects. Have you had any antibiotics ? They may cause a bad reaction, you need to be assessed by a dr.

      Jean

       

    • suncat
      suncat jean34329

      Posted

      australia its hot hear no ir conditioning im so scared i need air .what should i do my rhem will not be truthfull i have every sign of sjorgens and need meds. saline is not wotking.antobiotics donot help.puting cold water on me and need fan sinus wont clear.im in sydney and hot here today. need to go to hotel.  is thereanthung i cando?????please help

       

    • suncat
      suncat

      Posted

      australa  ot hearbtoday no air in the house just fans  antibiotics are not working      please help imnot on any meds. whatcn i take saline is not working

      cank clear my nose.

       

    • jean34329
      jean34329 suncat

      Posted

      Hi Have you seen an ENT doctor?

      Maybe you have a nasal polpyp >

    • jean34329
      jean34329 suncat

      Posted

      Yes. You tell yourself that you are going to be all riht. Have you become acclimatised to the heat yet? Were u born in, lived in Australia for long etc.

      FIRST AID TREATMENT FOR HEAT EXHAUSTION.

      It sounds like over heating, heat exhaustion. You need to know what to do in these situations.

      Get some water on cloths or tissues and apply to your pulse points to cool your blood down. keep changing them when they get warm, th eiedea is to cool the blood down and the body, this  is called tepid sponging. Please do i NOW. Drink WATER.get a jugful .and keep sipping it, put a few grains of salt and sugar in it.

      Eat an orange or tomato anything that contains potassium.

      Get hold of a dr. Are you in the house, flat on your own? You need someone wiith you but firstly rehdrate yourself  and replace the lost electrolytes.

      Please get a dr.

      U need urgent treatment for heat exhaustion.

      Fluids. WATER. Not tea of coffee but WATER.

      You need to replace the electrolytes, so need a tiny amount of sallt. You need to call a dr NOW and tell him that you are suffering from heat exhaustion and can he please advise you urgently.

      Sjogrens is not nice but is not the priority here at the moment.

      I

      Get some fluids down you. WATER. Put

    • jean34329
      jean34329 suncat

      Posted

      Dear Suncat

      Are you feeling any better? Did you drink plenty of water? Have you phoned for a dr?

      Did you teppid spoonge your pulse points in the wrists, pallms of hands, forehead , body.

      Please reply and let us know that you are ok. Keep out of the heat. Lie down in a shdy place away from th glass windows etc. Keep th fans on, kkeep drinking water with just a few grains of salt in it to replace the elctrolytes .

    • suncat
      suncat jean34329

      Posted

      jEAN IM GOINGthrough a divorce I have to leave her in 3 weeks to Los Angeles myhome..My husband not suppotive , Im going back with no home and Im stressed so it does not help. I saw a rheumatologist here and not happy with him blood test normal yet allnsymptoms of ss. Fibromyalgia.I cnt clear sinus at night drymouth also my mind is not focusin.  I did what you aid cold water drank water with honey andsalt i did not try..should i put the salt in water...also amonth ago blury vision and eyes changed.That stated and 5 months of bladder problems.Im not going out side..Smellls are intensified and thehot air is hard to breath if I wak]lk outside.. I noticedsmells bother me even ckeaning solutions and herbs.I put cold water behind my neck and pulse. I need another Doctor ENT????or rheumatologist????or immunologist?whatmeduicine do they give you????anything to help the breathing from nose????The saliva get diminished so what  do we do????THANK YOU FOR YOUR SUPPORT iM HERE ALL DAY iLL TEXT YOU  lOVE SHEILA
    • jean34329
      jean34329 suncat

      Posted

      Hi Sheila

      Firstly do not drink any alcohol that will make things wose.

      I am sorry about what you are going through.divorce is a very stressful process but if he is not supportive then you are better away from that situation.

      Why do you have to leave?

      Isn't i 50-50 when you split up?

      Have you got a good lawyer?

      How come u have no home in LA? where will you how will you survive?

      I am in the UK so do not know anything at all about the US system of Social Assistance etc.

      Your nasal-nose- problem. You really need to see a dr because I guess that you have a bnasal polyp. These cause horible signs and symptoms BUT are not life threatening, what happens is tha these polys block the nose and cause mucous to be produced which makes your nose run endlessly. I feel sure that the dr can prescribe a nasal spray to slow this process down, you need the diagnosis first though.

      Then a referral to an Ear Nose and Throat specialist for removal of the polyp. ENT specialist. You must keep hydrated, that is you must keep drinking pkenty of water but not too much as that can be dangerous. Just a glass an hour with a FEW grains of salt in the glass say three times a day, not in every glass  just in about three a DAY.

      You need the honey for energy.

      Try and eat something.

      relax. you can get through this. Lotsof others have so can you.

      Things will improve but at the moment you need to focus on the following:

      Keeping your fluid intake at an adequate and safe level.

      Getting enough electrolyes.

      Eating.

      Keeping out of the sun.

      Tepid spongingthe pulse points in your body. These are the wrists, palms of hands, forehead, groins. Plenty of water.

      Listening to relaxation tapes and/or relaxing music.

      Seeing a dr about your possible nasal polyp and getting an inhaler or spray.

      Keep your confidence up, your husband wil try to put you down , do not let him get to you.

      Jean

       

    • suncat
      suncat jean34329

      Posted

      Jean i have been having rhraot spasm withdry mucous is this common ..Can you advise me what to eat to gain weight please ..I do not have a flair iYougurt??Chicken

      and tried toeat rice this is no good ???no I need carbs  xoxoxo

Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.