I have been being tested for Lupus & Sjogrens for several months now.
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Could some of you have been diagnosed with either Lupus or Sjogrens please share how you got diagnosed. The Rheumatologist I'm seeing is not very good. I'm going to find someone else. We have a friend that had a lower lip biopsy & that's how he was diagnosed with Sjogrens. I have several of the symptoms of both Lupus & Sjogrens but this doctor doesn't seem to care whether he finds a diagnosis or not. He's a little strange & he's lost other patients because of his behavior toward them. I will appreciate your help. Could you also list your symptoms. Thank you, Celia
1 like, 15 replies
shira75032 celia0407
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I was diagnosed with SS based on positive ANA blood test though serology non-specific to SS, parotid salivary gland and eye involvement with very positive Shirmer's test (0mm).
I also have skin inflammation, swelling and a variety of allergies though my diagnosis was not based on these symptoms.
Very few people actually go through lip biopsy from what I've heard, though that's a definite way to get an accurate diagnosis.
What are your symptoms Celia and what have your blood tests shown?
celia0407 shira75032
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if anyone has any information that might help - please let me know.
Thanks, celia0407
shira75032 celia0407
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Have you been to a neurologist to check for MG (regarding your muscle weakness)?
morelia100 celia0407
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shira75032 morelia100
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Thanks!
celia0407 morelia100
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Thanks, celia0407
suncat celia0407
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theydont care here in sydney..Im going back to the States trying to find also immunologist Any chance is your balance ever off??
celia0407 suncat
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suncat celia0407
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Cloch47 celia0407
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although I understand that is comparatively quick compared to
some people. My symptoms were extreme fatigue and rash on
arms, hands and chest. I am on Hydroxychloroquine and I must
say I have improved significantly, although recently Neuropathy has hit me.
hope this helps.
shira75032 Cloch47
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Cloch47 shira75032
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episodes of fatigue but nothing as crippling as before. I have
also learned to pace myself which is important, I now know not
to overdo things, and have accepted that I'm not going to be
able to be as active as I used to be.
shira75032 Cloch47
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suncat celia0407
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jerseygirlinsc celia0407
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