Posted , 12 users are following.
Hi guys,
I've had a number of stomach problems since having a large ovarian cyst and my ovary removed a year ago. I've been diagnosed with IBS and I'm taking mebeverine. I also have acid reflus and dizziness due to low iron.
My question is, how does your IBS make you feel? I seem to have discomfort and bloating most days and have flare ups where I feel incredibley sick with frequent loose stools along with just a general feeling of groginess, tiredness and feeling unwell.
If you do have flare ups, how often do you feel unwell?
I'm suffering from quite a bit of anxiety and I feel like there is something that is being missed. I would just like reassurance and to hear some of your stories if that's okay
Thanks
0 likes, 32 replies
michellelvj pennylane909
Posted
I'm undergoing testing at the moment too and all results have been clear so far, so looking like IBS. I too have been feeling extremely anxious and have often felt as you do that something has been missed. In fact my primary symptom is feeling extremely unwell (very nauseous to be precise), so I hope that provides some reassurance.
What tests have you had yet? Xxx
pennylane909 michellelvj
Posted
I had tests for collitis, celiac, signs of inflamation. I've been going back to the docs over and over as symptoms keep getting worse, only to be told it's only IBS
I just feel awful pretty much all of the time. Do you get flare ups?
Thanks,
Penny
michellelvj pennylane909
Posted
Have you had any internal tests, like sigmoidoscopy or colonoscopy? Xxx
pennylane909 michellelvj
Posted
I had a sigmoidoscopy two years ago and nothing was found but then I had a really large cyst on my ovaries last year and they thought that was causing all the upset to my bowels etc
But even after the removal, my stomach is still upset frequently plus other symptoms mentioned
It's just awful. I'm having an examination next week to see if anything else is going on with remaining ovary but I just worry that there really is something more going on with my bowels and it's not getting looked in to because I have health anxiety
xxx
michellelvj pennylane909
Posted
Have you spoken to your GP about the anxiety and are they sympathetic? I would suggest that if you are really concerned that you insist on a referral to a GI at the hospital, for no other reason than to put your mind at rest. I am doing this too. I know how debilitating even the anxiety can be. Have you had an ultrasound recently? Xxx
pennylane909 michellelvj
Posted
The GP referred me to speak to someone about my anxiety which I'm doing next week
The only ultrasound I had was a year ago when they discovered the large cyst. The doctor mentioned today that I can have a scan of my stomach if things persist in the next few weeks but I might ask to be referred. I just never ever feel well!
Was just hoping to hear how IBS made others feel so I can compare. The info you find online is always so vague! X
michellelvj pennylane909
Posted
I don't just really specific discomfort on my lower right side. I've had so many scans and all come back clear. Xxx
michellelvj pennylane909
Posted
Do seek help for the anxiety. Be very kind to yourself in the meantime. Perhaps try a low residue diet for a few weeks. That helped me hugely and gave my bowels a rest when the medication did nothing.
I constantly remind myself that likelihood of this being bowel cancer is minimal (how old are you, any family history?) Work on the basis of facts, your results have all been clear so far. My GP said cancer usually shows up somewhere in initial tests, even little hints. Push for further tests to reassure yourself but focus your energy on reducing the anxiety. Do not Google anything. This will make your anxiety worse. According to Google everything is cancer. We live in a world where the alerts to it are everywhere and it gives us a disproportionate view of the statistical likelihood.
Be kind to yourself. We forget to do this. Xxx
pennylane909 michellelvj
Posted
I'm 30 and my grandmother died from bowel cancer. I've mentioned it to the doc and she's said it's very unlikely to be anything sinister
In just struggling with the reoccurring upset stomach I have. At least once a week I feel like I have a stomach bug and then the rest of the time I just feel bloated and uncomfortable
In answer to other questions here, I don't get pain every day. Usually only when I'm on my period I have excruciating pains and shooting pains in my bowels
Today I have a very upset stomach where I can't eat anything and have needed to go to the loo all day. I feel very sick and groggy and have pain on my right side when I touch it
I guess my anxiety isn't helping matters but I will push for more tests
Thanks everyone for replying xx
michellelvj pennylane909
Posted
I had the frequent bowel loose movements, (literally all my issues came on over night), discomfort on the right side (where I feel there's something good stuck in there), nausea and unable to eat for days at a time and weight loss (yeah, that really freaked me out thanks to the Googling). A host of stomach issues, burping included (lovely). So im taking omeprazole for acid. I've had every blood test going, 2 ultrasounds, stool tests and also a flex sig. All normal. Now I want an endoscopy and colonoscopy. I'm also waiting on a gynae referral. If they are normal I'll just have to admit the docs are right!
Is the nausea bad for you Penny? I can suggest some meds to ask for from the doctor. Also the low residue diet for 2 weeks may really help you. It did for me and I really didn't think it would do. Xxx
pennylane909 michellelvj
Posted
I get burping and have acid reflux (only since starting mebeverine and peppermint tablets) and often feel like my throat and chest are very tight
I feel very nauseated right now and seem to get it at least once a week along with a very upset stomach and the foggy/groggy feeling. I feel exhausted when all these symptoms come together as well
I'll see what happens next week at the doctors but I really want more tests for peace of mind! What a life eh
Xxx
michellelvj pennylane909
Posted
Does your nausea get worse with your period? Our symptoms seem so similar. I've not seen anyone on the boards with our exact combo of symptoms before. My upper gastro symptoms also came on after the mebeverine. I'd never connected them before! I'd also always been fine with peppermint before too. Now it makes me so burpy.
If the nausea gets bad you might want to try some buccastem tablets. You can get them OTC and they are usually for nausea associated with migraines. They work by blocking the signals from the vomiting centre in the brain. My GP recommended them. They give me relief for a few hours when the nausea is bad and longer at other times. You dissolve them between your upper lip and gum so you don't even have to swallow them. Ginger tea has been helpful if the nausea is mild. Good for the bowels too.
Keep on at the docs and I will too. Keep me posted if you get anywhere and I'll do the same. If you ever need to talk because you're worrying, send me a message. You're not alone and you don't have to be scared hun. Xxx
pennylane909 michellelvj
Posted
Yeah all my symptoms get a million times worse the week before and during my period and my anxiety is even worse then too
I'll definitely try the ginger and low residue diet. Thanks a lot for everything you've said and I hope you find some relief too
Likewise, message me any time. You've been really helpful
Thanks again to everyone who has replied and I hope everyone feels better soon
Xxx
michellelvj pennylane909
Posted
Honestly, just do your best to stop googling. I've not found any answers in all the time I have (6 months). Stick with these forums instead. Believe it or not my job is in research, and I'll still believe any old crap I read on the Internet about health, rather than my docs who've been through years of extensive scientific training. That's actually ridiculous. I should definitely know to question my sources better! Hard I know when you've convinced yourself there's something wrong.
Willing you to feel better asap and get some relief. Be kind to yourself in the meantime and try and rest and focus on healing your mind too. Maybe try a hypotherapy/meditation app thst helps when my anxiety goes through the roof. You're allowed to not worry about this every minute of the day. I always wish someone would remind me of that. Xxx
philippa61759 pennylane909
Posted
I had to wait three and a half months for diagnosis. I had severe health anxiety that something was being missed due to the lack of knowledge of the doctors and the number of tests coming back negative. I saw eight GPS and only one recognised my symptoms. I was tried on Mebeverine and within minutes I developed 5 new symptoms and felt 50% worse. I had no improvements in symptoms with this medication. I have since discovered that Mebeverine is known to produce very nasty side effects.
This intensified my panic that something was seriously wrong. I then tried Buscopan and it relieved my symptoms without side effects.
pennylane909 philippa61759
Posted
What sort of symptoms did you experience with mebeverine? I don't think they work for me at all!
philippa61759 pennylane909
Posted
michellelvj pennylane909
Posted
pennylane909 philippa61759
Posted
Neither help my stomach issues either
michellelvj pennylane909
Posted
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