Classic and Acephagic

Posted , 3 users are following.

I live with a constant headache.  Have for years.  Went to headache specialist when I was 16 who said it was all in my head...DUH!!!

I ended up going to a neuro who said I had Classic with Auras. His diagnosis was that I developed them because my father had them..His were that bad he would black out. Most days it's just a dull ache in the back of my head but I experienced my first massive one in 6 years this past Monday.  Ended up in the local clinic.  Blurred vision, numbness down the left side of my face and my left arm, (I would liken the sensation to what you feel when you've been to a dentist and the freezing is wearing off.), double/blurred vision, nausea...and the list goes on.  Was given a neuro exam and sent home with the instructions to take my migraine meds.  Had to take both doses and 3 days later still have a moderate amount of pain. Mostly in the back top of my head.

2 1/2 years ago I thought I was having a heart attack and ended up in the hospital with bp 187/132.  They thought I was stroking out.  Turns out  I was diagnosed with Acephalgic Migraines.  Sometimes they are called "silent". I get auras but no pain. 

During these attacks my Auras usually consist of blurred vision, numbness (as in classic), dizziness, nausea and my blood pressure soars. I am on Furosimide for the BP.

 I usually have atleast 2 classics a month and up to 20 Acephalgic.  I don't take anything for the Acephalgic but take Frova for the classic.  I  find lately that the Frova doesn't work as well as it use to. Has anyone had any better success with other triptan?

0 likes, 3 replies

3 Replies

  • Posted

    I don't know where you are but here in the UK I find sumatriptan brilliant although it is recommended that you don't take more than 12 a month. For the past year I have been on Pizotifen, 2 a day, and since then I have found that although the frequency of my migraines hasn't changed, the intensity has, and most of the time I can get away with just taking extra strong paracetamol, which between my neurologist and GP we have agreed that this is the safer option. Having said that, I have woken up with a migraine and the paracetamol hasn't worked, so I've had to take a sumatriptan. I expect the headache to go after about an hour.

    Someone did post on here, asking about the side effects of sumatriptan, I haven't experienced any.

    I am a migraine sufferer of over 40 years and have tried everything, so I wish you well.

  • Posted

    I take zolmitriptan - it comes in orodispersible form so I just pop one under my tongue at the first sign of a migraine - then if i vomit I still retain it. Nine times out of ten if I take it in time, it stops the migraine from developing.

    I have tried everything over the past 25 years and this is the one that works for me - I hope you find the best one for you!

  • Posted

    I'm in Canada.  I have an appointment with my neuro in two weeks. I hope he'll try me on something else.... had a headache for 4 days straight after the initial migraine.  Took the frova but it only dulled the pain.  Ended up eating Ibuprophen twice a day.  Dull ache still around the back of my head today but it's managable.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.