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Hi all, I am 37 and live in the UK, Ive just finished my 3 month course of Esmya for the 5 Fibroids I have.
Now I can tell you about all the side effects of which I suffered from the weight gain to the hot flushes, but its really the stage of finishing the course and wjhat happens next I would like advice if anyone has any??
It has now been 1 week and 5 days since i took my last tablet, and the first week I was ok but after that I have had very dull aches in the tops of my thighs and stabbing pains in my lower stomach, as you women will know when it gets to that time of the month majority of people have that stabbing pain which feels like it is going straight up the middle of your stomach, well this is just like it but more severe as to the point I double over, I was seen last night by the out of hours GP and he gave me some pain killers to manage the symptoms but thats all he could do, he had never heard of Esmya so couldnt advise me, just told me to contact my own GP who then would be able to get in touch with my consultant up at the hospital.
I just wondered has anyone else had this problem and was told it was a normal process as no-one has told me what happens after taking Esmya, only that my periods should start again within 4 weeks of stopping the medication?
0 likes, 17 replies
peruvian_lily kirsty88781
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jaspy kirsty88781
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My experience was a little different to yours but I had one very large fibroid last year which I was prescribed 2 courses of Esmya for before surgery.
I found I had worse cramping, pain and leg aches before the Esmya started as I was having such dreadful heavy, almost constant periods. The Esmya was a life saver in stopping my bleeding so my anaemia was lessened.
I had my fibroid removed in July but had regrowth by September (a bunch of small ones now). I asked for Esmya again but was refused. I was offered Zolodex (I refused). I am currently waiting for a hysterectomy next month. Anything to get rid of the fibroids!
Periods/women's health are not taken seriously enough in my opinion. My fitness and mental health has suffered alongside the womb issues.
Good luck with your treatment.
kirsty88781 jaspy
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I too have always suffered with my periods ever since i started them i think, its was like a red hot poker being poked up and twisted, doubled me over so when the treatment of Esmya started and they stopped, it was such a relief, it was like a new lease of life for me, but a week and a couple of days since stopping them, my gosh i got the pain back, going to try again in April and ask the consultant to give me a hysterectomy, it spoils my life when im due, i even know when im ovalating, its like i can feel it expecially if its the right side.
Im with you on the mental side of things cause i blame them not sorting my fibroids out earlier as to why ive never had my own children, dont get me wrong my step children are great and im becoming a nanny in May but still would of liked my own.
I hope everything runs smoothly with your hysterectomy next month and wish you a speedy recovery x
christine65130 kirsty88781
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kirsty88781 christine65130
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Thank you for replying, at least with everyones comments it gives me a little insight into what can happen, i just wish my doctors would listen to me and let me have the hystorectomy.
I have been given Tramadol and Naproxen to help with the pain and if it gets worse go back but thats all they can do until I see the consultant in April.
Hope you get sorted out too hun xx
peruvian_lily kirsty88781
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kirsty88781 peruvian_lily
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Briggsy kirsty88781
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Thank for saying about the weight gain while on Esmya. My GP did agree with weight gain being a side effect as well as menopause making you gain weight. I have had dull aches in the top of my legs for a while now ( i was on Zoladex for 3 months before taking Esmya) I have also had a lot of pain in the stomach on both sides of my tum. Last week i started to 'spot' but apparently that is normal as hormones are all over the place ( but i have been on medication to stop all periods since October of last year).
I had a op last December to remove my fibroids and to thin the lining of my womb but when the surgeon went in, there as a large fibroid blocking the way so they could not do anything. So back to see the consultant feb 25th so fingers crossed i will have a hystorectomy (i am 47 and had 3 kids) - the consultant says i am a prime candidate to have one.
My GP told me the Esmrya tablet is a Gynae tablet that GPs dont prescribe out.
I hope things all calm down for you and the pain stops and your periods light!
x
kirsty88781 Briggsy
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Fingers crossed the pain will ease soon and they will come around to the hystorectomy.
Fingers crossed for you too hun, hope all goes well with you xx
christine65130 kirsty88781
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bill20925 kirsty88781
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I have seen a few reports written by advanced female OBGYN's on the very good reasons to seriously consider this minimally invasive approach versus the other procedures which are much harsher on your body.
The kind of medical professional you want to talk to for UFE is an IR, for Interventional Radiologist. This profession is the Navy Seal team in hospitals who get brought in when things go bad for patients. IR's do all kinds of wonderful minimally invasive procedures, including UFE, PAE (Prostate Artery Embolization), clot busting to stop aneurysms from happening, fistula elimination (often caused by chemo in cancer patients or patients with severely weakened immune systems), and men and women with severe back pain brought on by scoliosis and cracks in their spine.
If you want to talk to an IR, I suggest you ask any good sized hospital who they recommend. You will find IR's in nearly al major hospitals. Many top IR's may also be independents with clinics nearby.
I am not a medical professional, but I take great interest in breakthroughs and have ended up knowing several IR's who have changed people's lives. If you want to find an IR in your area I am happy to try to help you locate a few. I get ZERO out of doing this. You can either reply to this post, or email me and I'll help.
kirsty88781 bill20925
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Thank you for your reply, I have just researched all about the above and can admit ive never heard of it before, but i will tell you this If my consultant wont do what i want them to do I will look into this further.
so thank you Bill
christine65130 bill20925
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bill20925 kirsty88781
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The short story on how this works is:
1) IR's are THE specialists at going non-invasively through veins and arteries to get to where the issue resides, in this case, fibroids.
2) They inject a few fiber slivers to where the fibroid is attached, essentially cutting off all blood flow to the fibroid/s
3) The fibroid shrivels up within days
I cannot absolutely verify everything I describe above is totally accurate, but believe it is true or very close, based on extensive discussions with IR's, and reading articles on the procedure. Good luck!
PS If anyone is out of Chicago or has easy access to it, 2 top IR's here are Dr Robert Vogelzang, and Dr Steven Smith. There are several others here, and these guys know many IR pros in other cities to reach out to. Good luck!
bill20925 kirsty88781
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Just search for "Interventional Radiology Spain Fibroids" and see what comes up. Good luck!
christine65130 bill20925
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