How long does it take to feel normal?
Posted , 7 users are following.
Hi everyone haven't posted for a while!
I was diagnosed last October started with 10mg carbimazol and 40mg of propranalol. Now i take 5mg of Carbimazole and 10mg of propranalol and yes i do feel better, however i still do not have my full energy back and need lots of sleep, i ache especially my one upper arm and especially ache in bed at night! Also i look pale and pasty so much so people ask if i feel ok!
I am now eating a really healthy diet, taking vitamins drinking lots of water, and now starting to do some exercise in the form of long walks! I know doctors don't seem to be very knowledgeable about this condition, but how long does it take to get completely back to normal? I seem to have 2 or 3 goods days then the next day can't seem to drag myself out of bed! It doesn't help that my husband isn't very understanding and i'm sure just thinks I'm lazy, so i feel guilty if i stay in bed!
1 like, 15 replies
Sue1247 Welsh_girl
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karen30256 Sue1247
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Can't say I blame you with your decision to have a thyroidectomy. Have u been offered RAI?
Mind my asking u what age group are you in? Roughly!
Sorry about the questions but still learning about this horible condition.
Another quetion coming up into my mind now!!
Do you know what the long term management of someone who has a thyroidectomy is or will be?
Best wishes
Sue1247 karen30256
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karen30256 Sue1247
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Wow!
Many, many thanks indeed for your e mail.
It has restored hope in my future. So thank you.
I am in the same age group as yourself and have been worrying relentlessly about being written/fobbed off due to age.
I would like to say that I entirely agree with all your comments .You have stated everything that I have been thinking about myself etc for several months.
To reiterate.
I am in exactly the same boat as yourself including the eye problem which I still do not know if it was a TED or not!
All this started two years ago wth severe headache, throbbing pain in my eye, loss of appettite, panic attacks, drenched in sweat every night for months, fear of being left alone in the room even with someone else in the house.Exhaustion then insomnia.
In fact the posting entitled 'A letter from Graves' sums everything up for me plus the severe headachs and throbbing pain and dry eyes.
All my signs and symptoms anxiety, depression inability to make a decision were all completely out of character.
Family passed comments to me about the change in me etc.
I could not understand these overnight sudden changes . Drs confirmed that it was not a mental health ssue but sadly were unable to come up with a diagnosis to explain these weird but not so wonderful issues.
I did notl ike this new me.
Several months later it materialised that I have a thyroid disorder. I hhadlow TSh, antibodies, nodules on my thyroid. Hence being offered RAI. Carbimazole is not considered to be appropriate due to heart block and long QT synndrome. yet left untreated my heart is at risk anyway! I already have osteoporosis.
Given all of the above I have reached the same conclusions as yourelf.
I would rather opt for ablation for myself even if it means taking thyroxine
Thelast two dayshave been horrndous with ultiple panic attacks.
I would have RAI or surgery right now if they were offered simply to get away frm the situation of feeling ill 24/7.
. I had a problem with dry eyes, concretions, throbbing pain in my right eye, floaters. I do not know if I had TED or not! This happened prior to my knowing that I have a thyroid disorder.
Are you in the UK?
Karen.
Sue1247 karen30256
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karen30256 Sue1247
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Good thing you have a new Endo.
I agree with your comments about it is abbout time that this was sorted. Quality of life is vastly important and age makes me more aware of that. I feel resentful that my condition has been 'overlooked' and treated so causually. Like yourself I am now determined to gt this sorted asap. May I ask if you ever have what some drs refer to as panic attacks. I have them and blame it on the thyroid disorder.
Sue1247 karen30256
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Sue1247 karen30256
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karen30256 Sue1247
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I have wondered if the 'panic attacks' are due to the varying levels of TSH throughout the day?
Thankfully I do not have dementa! Thanks for the info anyway.
linda187 Welsh_girl
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Welsh_girl linda187
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Once again thanks for your advice!
karen30256 linda187
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Sorry but you may have already given the answers to the following questions. If so I apologise in advance.
Mind my asking you what your blood results showed way back in 2007?
Were all your antibody levels raised etc.
What dose of L-carnitine were/are you taking that has helped you.
I appreciate your time and patience.
Many, many thanks.
All best wishes
Carnitine and Acetyl carnitine you took that helped you?
Are there any contra-indications to using them?
i
Like smany others I am scared of the full blown signs and symptoms returning. It seems though thydetails to my questions. If so I apologise . I am having a particularly tough day that seems to consist of masses of panic attacks, feeling nauseated and worried about not yet being treated for hyperthyroidism.
I wondered what dose of L Carnitine you were taking and also what your Thyroid blood tests show.
Again my apologies for repeatingg
linda187 karen30256
Posted
Free T4 29 (range 10-20)
Free T3 13.5 (range 2.6 - 5.7)
I was started on 10 mg of Methimazole. For the next two years my labs were:
TSH less than 0.01 stayed this way until June of 2009 when it was 0.05
FT3 2.7 (range 2.6-5.7
FT4 14 (range 10-20
My FT3 and FT4 were pretty much at that level until I introduced Acetyl-L-Carnitine.
TSH rose to 0.23 in April, 2010 when I started taking regular L-Carnitine 3,000 mg daily, Frees stayed about the same. About this time, my Methimazole dose was lowered to 7.5 mg.
In December, 2012 my TSH rose to 1.48,
Free T4 12 (range 12-21)
Free T3 4.8 (range 4.0-5.8
This was after I added 1000 mg of Acetyl-l-carnitine. In order to keep it there, I had to adjust acetyl dosage to 500 mg every other day and decrease my Methimazole to 5 mg. It pretty well stayed between 1.5 to 2.5 with my playing around with dosages and the Frees were at the bottom of range until March of this year (2016) I had my Methimazole decreased to 2.5 daily in September 2014 and my results in March, 2016 were
TSH 1.63 (range 0.30 - 4.00)
FT3 4.6 (range 3.5 - 6.5)
FT4 13 (range 9.0 - 23.0) at which time my dose was lowered to 2.5 mg every other day.
netti Welsh_girl
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Try not to overdo it on good days. It is very tempting to rush about getting all that stuff done that you had no energy for yesterday but I found I would always regret it later. At least it has been over the winter - I spent days on the sofa watching films or reading.
Take care welsh girl and hope you continue to improve.
dee_kee Welsh_girl
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