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Question for Occipital Neuralgia (ON) sufferers

Posted , 4 users are following.

Hayhue
Hayhue

I was told by my neurologist that's what I have which is fine I have a lot of the symptoms (burning in head, ache, sharp pains, etc.) however I would like to know if anyone else experiences a metallic taste with theirs?

Or bitter taste? Hard to explain the taste exactly but I noticed I only get this taste when my ON acts up.

My right cheek also feels numbish when it comes along. I have a nerve test for neuropathy in a few weeks (to see which kind I have) and have had CT/MRI of brain which was clear so the taste may be related to the neuropathy but it just seems weird it comes when the ON comes.

Any guidance will help. Thank you!

0 likes, 5 replies

5 Replies

  • KMRC
    KMRC Hayhue

    Posted

    Sometimes the docs can resect the nerve causing the pain or even use Botox!  I had it done over 15 years ago and while I still have occasional eye pain, for the most part, the intense pain is 95% better. 
  • lesley99237
    lesley99237 Hayhue

    Posted

    My daughter suffered with severe ON some years ago, in her early 20s. Doctors wanted to prescribe very powerful meds but our research suggested that chiropracty might help and this was indeed the case. She ditched the meds and did not need surgery. Her chiropractic managed to realign whatever it was that was causing the problem over a few months and she is absolutely  fine now.

    I was sceptical but have to admit that it worked.

     

    • roy71827
      roy71827 lesley99237

      Posted

      I'm in the same situation ,do you know what needed to be realigned? My Dr said its coming from my neck but my trapezius muscle is knotted and sore ..
  • lesley99237
    lesley99237 Hayhue

    Posted

    This is what my daughter said when I emailed her after reading your post earlier.

    "I often find a lot of people very anti-chiropractic.

    It helped me because I have one leg a wee bit longer than the other (not by much, it's my left leg which is longer), which results in my hips being out of balance, and then everything eventually being unbalanced up my spine to my neck, which jams up/traps/irritates my nerve.  Sometimes I have had neuralgic pain in other places (once in my ear) and chiropractic has always been able to free up the nerve."

    You would probably be unaware of a problem with your spine until this happened. Problems with trapesius? sounds spot on to me; your spine is obviosly compensating for problems further down and, when you think what a head weighs, it's not surprising we get problems with the tissues around the upper spinal nerves!

    Hope this helps

    Lesley

     

    • roy71827
      roy71827 lesley99237

      Posted

      Thanks ,and I noticed when I massage the traps muscles the head pain eases away until the next day I can feel that tingling nerve behind my right ear. Its getting annoying ,maybe I should just check out a chiro.
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