Posted , 2 users are following.
Hello, I just happened upon the Sjogren’s forum, and boy am I glad, well, sad at the same time that others suffer with this too! I am on a few of the other forums here, but had no idea there was one for Sjogren's.
I am a 61 year old woman, and I have had Sjogren’s for several years now, been on Prednisone for my RA, and was on Plaquinil (sp) but I was one of the oh so lucky one’s that had to be taken off of it, due to it damaged my eyes in the first 3 months. Mine started with the the dry eyes and dry mouth, so was put on Methotrexate. First 7 pills a day, then had to be upped to 8, was causing damage to my stomach, so had to go to shots daily. Then that caused my hair to start falling out, skin lesions, and overall just feeling very sick. Had to stop that, plus after being on it for over a year while it did help a little with the dry mouth, it did not slow the progression of my RA, we stopped it. It has caused many other problems, like my liver, and blood pressure, and stomach. That stuff is very toxic. I have been off of it now for 6 months, and my hair is growing back, and we are working on the rest. My RA doctor wants to try me on Imuran, waiting on the ok from my Urologist, and my Gastro doctors first. But, need to do something, as my hands and wrists are so very painful, as well as the rest of my body.
I use artificial tears daily to help with my eyes, and I chew sugar free gum all day long, and drink water all day long. I go to the dentist twice a year, and my husband and dentist call me their mad flosser, as this is the only thing that will save our teeth...along with brushing at the very least, twice a day, and I do more. I may get old, but I refuse to be an old toothless lady! LOL I am doing everything I can, or at least I think I am, but sometime I hurt so bad, and I am so sick of all of these meds. I also have been having problems with my adrenals and kidneys due to this...after a while, it starts to attack our organs, and that is scary! How on earth did we get this strange thing?? I’m sorry this is so long, but I guess I am just so shocked that I have found a place where others have the same thing...I just started jabbering on. I would love to hear about what others are doing do help themselves with this thing, and maybe if anyone has suggestions or advice...it sure would be appreciated! If you actually read down this far...you must be an angel!!
0 likes, 3 replies
kristyk deidra40034
Posted
Kristy k
deidra40034 kristyk
Posted
I am so glad hear about a new drug!!! That would be wonderful!!
Thank you for your response and kind words! I wish you Good Luck too!! And God Bless!!
Deidra
kristyk deidra40034
Posted
Just sending a little ha ha joke. Laughter is the best medicine.