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Hello everyone. I was diagnosed with PMR around 6 weeks ago. I am a 67 year old female. Developed pain in my left arm, shoulder and neck which over a period of 2 months spread to the right arm. Did not come on suddenly like a lot of people's symptoms. Blood tests came back abnormal and Doctor put me on 20mg of Prednisolone which helped the symptoms but the pain in my left arm did not go. Doctor then reduced dose to 15mg and I was feeling great for about 10 days. Then the pain in my arm came back with a vengeance and now can hardly lift it. Also feeling really fatigued and shaky with massive hot flushes. Not sure if this is the PMR or side effects from steroids. More blood tests this week and see doctor next week, but the pain is really getting me down. Wondering if the steroid has been reduced too soon. Would be grateful to hear if anyone else had similar experience. Thank you.
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Oregonjohn-UK Joanne221248
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Joanne221248 Oregonjohn-UK
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lodgerUK_NE Joanne221248
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Did he do a Vit D deficiency test as an exclusion test? This causes aches and pains just like PMR and you can have both.
Oregonjohn-UK Joanne221248
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The link to these resources is https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
Unfortunallysome folks can get normal results in CRP and ESR so it's not always conclusive.
I would ask your GP/MD if you can go back to 20 mg for a couple of weeks more and then reduce down only by the recommended 10% (20 mg down to 18 mg) and also ask for the Vit-D test mentioned by Lodger.
Best of luck and welcome to the club we all don't really want to be a member of!
Joanne221248 lodgerUK_NE
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Joanne221248 Oregonjohn-UK
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Thanks also for your welcome - as you say it is a club we do not want to be a member of.
All help very much appreciated.
FlipDover_Aust Joanne221248
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Sounds like you need a higher dose to get the pain under control before reducing.
The shakey feelings and hot flushes will be the prednisone. Fatigue could be the PMR or the pred, take your pick! Pred doesn't get rid of fatigue, only the pain.
Joanne221248 FlipDover_Aust
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Great to have input from you all.
FlipDover_Aust Joanne221248
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Good idea. There's no point fighting when you aren't well.
Anhaga Joanne221248
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