I was diagnosed March 2006 with Lambert-Eaton Myasthenic Syndrome

I was diagnosed March 2006 with LEMS. I noticed extreme leg and arm weakness,total exhaustion, and blurred vision almost straight after my mother's death on 26 December 2005. I was prescribed Pyridostigmine. This had little effect, so was then prescribed Diaminoopyridine, which gave me a little improved strength for a couple of hours, but still couldnt walk any distance. Normally by mid afternoon I am totally exhausted with muscle aches and pain. I am now taking both the tablets and find I am improved about 30%. Some days I feel really weak and depressed. There is no pattern to these days, as some times I have relaxed on the previous day, then other times I have exerted myself prior to a bad day. I dont know if this is related but a month ago I was diagnosed with a secondary cataract.

I feel unsupported, as my consultant informed me LEMS is a rare condition and not a great deal known about it. I would appreciate it if anyone knows of a support group.

[i:c341229ddd]This message was automatically imported from the original Patient Experience[/i:c341229ddd]

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