HELP! Hip/knee pain (+ other symptoms)

PS. She is very thin and quite tall (don't know if this makes any difference to anything, but thought I would point it out just incase) She is sometimes kept awake at night from the pains, and her right leg seems to turn inwards. This turning inwards of the leg seems more prominent when the pain is bad.

Mention Guillain-Barré Syndrome to your doctor, it affects the nerves of the limbs and body and is usually triggered by an infection. I have neuropathy which was triggered by an old spinal injury. I am not in any way medically qualified, but I would suggest that your daughter should be referred to a neurologist. I pray that she finds the help that she needs.

Oh, your poor daughter! It just seems all so unfair when you have to watch your child in pain. I hope your GP will be able to diagnose her at your next appointment. Otherwise, I think you should insist on seeing a specialist!

Best wishes

Thanks Appointment is on Tuesday, hoping we get somewhere! Its sad to watch a previously very fit 14 year old struggling about like a crippled OAP!

I hope that you get a good doctor. Don't forget to mention Guillain-Barré Syndrome to your doctor at the very

least it will point him in another direction and make him think. Give your daughter our kind regards and thoughts. Good Luck.

Well! Saw a new doctor with her today! Came out fuming! According to him, my daughters symptoms are all perfectly normal because "she is very tall"! He didn't even examine her in anyway! My daughter has always loved her food, and could eat you out of house and home (yet remains surprisingly slim! so unfair! :p) told him she was finding it hard to eat because it was causing tummy pain, to which the doctor turned to me and said " she is probably making that up to avoid eating because she is scared of getting fat"! I could have slapped him! Even my daughter was like "I love my food and couldn't care less about putting on weight"! I did manage to convince him to give her blood tests (which he agreed to to check for anemia) so we are back on Thursday morning to have bloods done. Doctor said if bloods come back normal we should "just leave her to get on with it"

All I can say is that pain is not normal, it's a symptom of something even if it's psychological. We can only trust in the doctor's judgement. Good luck anyway.

Viatro is right, pain is not normal. From what you have written, your daughter really must be suffering. I think you should get a second even third opinion immediately!

Even if it is psychological, the doctor should diagnosis it, so your daughter can be treated accordingly. Not just to 'get on with it'! If the doctor suspected an eating disorder, surely it should be diagnosed too.

At least you got some blood work done. Let hope you get an answer once the results are in.

Hello,

Sorry to hear about your daughter. I recently starting getting Pain in my groin area and upper thigh. It started off feeling like a pulled muscle. But then got worse and worse to the point that I developed a limp. And it became very painful to walk. My foot started to curve in and I was getting alot of muscle spasms in my right leg. It became very stiff and to painful lift my leg up. I finally went to the doctor and was diagnosed with AVASCULAR NECORSIS. I did alot of research on it and it is possible your Daughter may have this. It happens to alot of young people. I am 30 but it ranges from 13-40 year olds. It can affect your HIP'S, KNEE's, SHOULDERS, ANKELS. It's mostly in Hips and knees though. In early stages a X-Ray cannot detect it but a MRI Can. Ask your doctor to order a MRI. I will keep your daughter in my prayers. If you would like anymore info about AVN just let me know

Thanks for your reply. Any advice on what could be my daughters problem is appreciated as I dont seem to be getting anywhere with doctors! My daughters symptoms continue with this knee/hip pain which continues to come and go, but also another list of symptoms. I have no idea if the symptoms are connected?

the list goes:

Hip and knee pain (one sided, comes and goes)

Back pain (mild, but constant)

Pain along right collar bone (comes occasionally, sharp pain, makes her have to stop what she is doing, sit down and hold the area)

Chest pain (moderate, occasional)

Upper arm pain (one sided, occasional, dull ache, tender to touch)

Breathlessness (persistent, she used to be very fit, and done long distance running, dance classes etc, now just walking upstairs leaves her completely puffed out)

Headaches (frequently)

Dizziness (frequently)

Shivering cold (frequently, although she feels really hot to touch)

Occasional bleeding gums, and the gums round her lower teeth seem to be receding.

Petechiae rash on feet and ankles (persistent, somedays it looks faint, other days its very noticable) also a couple further up her legs.

What seems to be dents in her thigh muscles (looks like sunken craters, one on each thigh, but not in the same place on each thigh)

Her torso has become "pushed" to one side. Her spine looks perfectly straight, but if you look at her waist, its clearly pushed to one side, if I try to "straighten" her up, a huge bulge comes out on the lower side of her back, and her ribs on the front also bulge out.

Sorry for the long list, but I thought I would list EVERYTHING just to see if anyone can make anything of them! My doctor agreed to test her for Anemia as she has been anemic in the past. 6 days after the test I got a call from doc's receptionist to say there was a prescription for iron for her and that was it.

I know a lot of her symptoms can be caused by the anemia.

She has been on the iron supplements for 2 weeks (still no improvement in symptoms, infact. the dizziness, headaches, breathlessness continue to become more frequent) I have no idea how long iron supplements take to kick in?

Its really stressing me out, mainly because I am looking at my daughter thinking "something is NOT right" Yet doc's are just telling me its apparently "normal"!

Some days, she seems not to bad, almost her "old self"! Then the next day she is just "ill"! She will look awful, be burning up and will just and just spend the day lying on the sofa.

Her school has commented on the fact this is about the first time she has not received a perfect attendance certificate! She is normally NEVER off school! She loves school, and hates staying off (strange child ) but she had had to have so much time off recently.

Also forgot to mention occasional stomach aches, and sometimes finding it difficult to eat meals due to discomfort in her tummy. And also increased thirst (and urination, but that could be due to the increased amount of water she is drinking)