Another Gallbladder removal resulting in never ending pain...
Posted , 20 users are following.
Thanks for reading firstly. I'm new to this site, my GP recommended it as a trusted reliable resource, and advised I should only use this site. I've been lurking for a while, but following an endoscopy this week I felt I would like to post.
In april 2013 I was diagnosed with Gallstones, following 18 months of misery. My Gallbladder was removed in August 2013. The surgery was Lap-col, it didnt go as smoothly as it could have, the surgeon was surprised by the position of my bile ducts and liver, saying they weren't where he expected them to be. My gallbladder was very diseased. Something was cut that shouldnt have been, and in my dopey post op state I dont recall what it was, I never saw my surgeon again as he left the hospital. It took 4months and 2more hospital stays for my wounds to close as they all became infected and had to be packed daily, then bi-daily till they were ready to close.
As the pain from the surgery died down, I noticed that I was still in a high level of pain, very very similar to the pain I had with the Gallstones; same location, lasting several hrs, nausious, high intensity, just completely typical gallstone pain, etc. I have now got constant diarrhea.
I was given a new consultant, who said it was just healing pains, come back in 3 months. I did, by now very certain that it wasn't healing pains.
In that time I changed my diet, I have gone completely low fat, and removed gluten. Ive done food diaries, nothing in particular seems to be a trigger food. The diarrhea still persists, but seems to be reduced to just the morning, as opposed to all day. My GP prescribed ora-morph, and codiene and both made the pain much much worse. I then went on to tramadol, and now Im on amitriptyline (no change in bm). I get days where I have diarrhea and no pain, but more than often a normal day involves an element of pain. Today is particually bad day for pain.
My LFT was checked and came back normal (which is a big releif as my mum and uncle have hemochromatosis). In the last 2 weeks I have had an MRI and endoscopy (biopsy for coeliac taken). I have no idea yet what the MRI has shown if anything, but the nurse who did my endoscopy did say that my stomach is full of bile. I cant really remember any other conversation with the nurse as I had been sedated. Im seeing my GP next week. No news as to when Im due to see my consultant.
Any thoughts? Im desperatly trying to not consult Dr google. I want to see my GP prepared, even more so with my consultant.
1 like, 23 replies
pattyp
Posted
Anyone out there had the same experience and actually found out what the problem was?
emmalou83
Posted
My new consultant hasn't mentioned at all what he thinks it may be, which is possibly half of my frustration. I feel like ive made positive steps in changing diet and being a healthier person overall, and yet im still in pain.
I want to ask him about SOD, PCS and bile salts malsorbation (only stuff ive read on here), but he isnt the easiest to talk with, and dismisses a lot of things I say (my skin is always horribly itchy leading up to an attack of pain, I still pee bright yellow urine, despite drinking 2.5lts of water a day).
Aikidogirl emmalou83
Posted
If your Doctor isn't listening to you and you don't feel comfortable talking to him, then you need to find a new doctor
boyzmummy
Posted
emmalou83
Posted
Strangely the only position that gives any relief is if Im bent forwards (almost like a labour position I suppose). The pain does not go completly at all, but it does offer some relief. Annoying that at 4am thats not a position that is easy to sleep in.
Apologies for the 'Woe is me' moment, but I am completely fed up, as I am sure many who suffer like this are, but it is taking over my life. Today has been a very bad day for pain
BrianRE
Posted
If it is any consolation my discomfort has eased as time has gone on although I have a fair way to go yet.
emmalou83 BrianRE
Posted
Im im seeing my gp this morning, and for a change I'm going to ask her questions that I'd normally not be brave enough to ask. Having had 5 days out of the last 8 where I physically haven't been able to eat I've kinda reached a tipping point.
flowersgirl72 emmalou83
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karen12522 emmalou83
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debbie75601 karen12522
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vanessa34493 debbie75601
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debbie75601 vanessa34493
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boyzmummy vanessa34493
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Do you get really hot with the pain? Do you get like funny bubbly noises too,
could you ask your GP for a second opinion or referral elsewhere? I feel for you I'm only two years post op, I hope they do something soon, you may not want to but get them chased up, take care x
vanessa34493 debbie75601
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vanessa34493 boyzmummy
Posted
vanessa34493 boyzmummy
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Suzanna.Marie boyzmummy
Posted
I had major complications with the surgery. I had stomach aspiration under anesthesia which lead to bilateral pneumonia, 7 days later I was diagnosed with Sepsis and almost died. I was in the hospital for a month, sent home with a nurse, and oxygen machine.
I'm 39, went into surgery with no other health problems. After being told this was a common surgery I'm totally heartbroken. I just wish this pain would go away.
mel86206 Suzanna.Marie
Posted