Posted , 5 users are following.
hi all, I am a 35 yr old male and I have mild scoliosis and worse-than-mild kyphosis. I live alone in a house and about 2 years ago I began to find it difficult to do stuff around the house, eg. Housework, hoovering, washing the car, etc. This has progressively got worse and now I find any physical activity to be challenging and overwhelming. As soon as I start to do anything I become tired, fatigued and experience back/muscle pain nearly straight away. As a result of this I cannot exercise and have put on a stone and half which I think is making things worse. I do Pilates when I can and have quite an active job which I just about manage to do.
does anyone else face these problems?
0 likes, 11 replies
BizzieIzzie dudydoo
Posted
I know how you feel, to an extent anyway! I too have experinced the pain that can come with scoliosis/kyphosis and I have also found a lot of day to day chores and activities really hard to complete - all I can say is that no matter how hard it is, you have to keep going!
Being overweight will only worsen the pain and the scoliokyphosis, so I would advise going to see your doctor, explaining the issue and obtain some painkillers that you can take, at least just until you are happy with your weight again.
Other pain management options that I have found helpful are TENS machines, heat pads & gels, sometimes even ice after a long day!
I am sorry that I can't be of more help and I really hope that you are feeling better soon!
Izzie
dudydoo BizzieIzzie
Posted
Thank you for your kind reply.
I do keep myself going, as you say you have to!
I am slowly losing weight now and hopefully will see an improvement soon. I have also recently been diagnosed with Chronic Fatigue Syndrome so that could account for my problems being worse. But I don't know if there is a connection with scoliosis/kyphosis.
BizzieIzzie dudydoo
Posted
As far as I am aware, CFS has not been proven to have any links with scoliokyposis, but I wouldn't take my word for it (I'm certainly not a doctor yet!). But I do hope that the doctor can give you drugs or something to help with this new diagnosis - and I really hope that you start feeling better soon!
All my love, Izzie
joan75138 dudydoo
Posted
dudydoo joan75138
Posted
Thanks for your reply and sorry to hear of your problems. I can certainly sympathise.
Lawyer dudydoo
Posted
they may suggest measures which will help you; and/ or arrange appropriate pain relief.
at so young an age you do not want to live like this. Certainly lose the excessive weight: it will reduce the load, and you will feel better for the achievement; while it will help your health in other respects.
i wish you well.
dudydoo Lawyer
Posted
Thank you for your kind advice. I have seen 2 or 3 GP's many times at my local surgery since I was diagnosed in 2000 and none really have any clue or seem to care. Even the consultant that diagnosed me 15 years ago didn't help much apart from ordering X-rays and confirming abnormal curves in my spine.
I was referred to a rheumatologist last year and she did seem to care and was helpful, at first. She found I had a lot of problems with my bones & muscles and found I had a very low calcium level. I had to take 4000mg vitamin D tablets a day for 4 months which brought the level up and made me feel slightly better for a while. But the rheumatologist does not seem to want to know now.
I also have seen a cardiologist because my heart rate is 90-100bpm rested and I get a lot of palpatations and other weird feelings with my heart.
I also used to see a Chiropractor on a regular basis, but I got dismayed at the treatment only being temporary at best.
I have quite bad Kyphosis and mild Scoliosis as far as I am aware but no idea how bad it is, but my thoracic curve is very noticable. When I bend down or over to do anything (e.g. load washing machine) my heart pounds, beats fast and I am then tired and slightly breathless when I am finished what I'm doing.
Apart from losing about 20lb in weight I don't know what else to do really.
Thanks again.
Lawyer dudydoo
Posted
it may be that a MRI scan can tell more than a basic X-Ray.
A specialist consultant should do far more. For example, have you been told:
* the degree of curvature e.g. 70 degrees
* whether the individual vertebrae are correct, or are "wedged"; and the state of the top & bottom of each where the vertebra meets the cartiledge disc
* whether the bone is sound, or is fractured or crumbling.
without this knowledge, how can a consultant make a diagnosis?
A large degree of kyphosis can cause downward pressure on your internal organs. This should be checked.
I can only suggest you go back, ask for a referral, and see a good consultant.
in the meantime, some research may be useful; but check more than one source. My own problem is Scheurmann's kyphosis and I found some useful commentaries. However, beware self diagnosis: insist on a competent specialist. I am very fortunate to have a superb GP and consultant: there are good physicians out there.
dudydoo Lawyer
Posted
annesimone dudydoo
Posted
Doctors--they have hundreds of patients. We have only one "us." I've felt let down by quite a few over the years and now I research everything.
I'm sure we'd all like to know how you're doing as time goes by,
dex01608 dudydoo
Posted
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