Posted , 10 users are following.
This discussion is aimed principally at men who experience pelvic pain, often diagnosed as prostatitis or as chronic pelvic pain syndrome. The urologist I saw at the onset of the complaint explained that it is hard to treat because there may be several causes. Once bacterial prostatits has been ruled out (apparently that is the easy part!) urologists are left with few proven methods of treatment.
The symptoms are severe continuous pain in the groin, and/or penis, worsened by sitting and by any kind of stretching of the groin area.
I was treated by a daily dose of tamsulosin, intended to relax the muscles of the pelvic floor. In my case it had little effect.
What has helped to reduce the pain almost to zero has been a low dose of amitryptiline. Amitryptiline was first introduced as an anti-depressant at high doses like 150mg. At some stage it was discovered that it eased pelvic pain but in very low doses. My GP had attended a conference and spoken to urologists who advised him to prescribe this drug.
You start at the low dose of 10mg once a day and give yourself time to adjust to any sleepiness effects it has on you. I found that by taking it at about 8pm and after getting used to it, there were no unwanted effects the following morning. For me the level of dose which has worked best is 20mg each evening.
Now I can sit on any chair and carry out activities which pain prevented before.
I no longer need tramadol or indeed any other pain killers. In any event, I discovered that most hardly work for pelvic pain. Amitryptiline, I am told, affects seratonin production in the brain and suppresses pain triggers from the pelvic area.
4 likes, 9 replies
andrew66395 john02
Posted
john02 andrew66395
Posted
So I was on that for two miserable years, quality of life severely affected.
I mentioned the whole thing to a practice nurse during a routine health check at my GP. She suggested I see "one of the younger GPs". Luckily this was the man who reported back from a conference and prescribed amitryptiline. It has been transformational and my hope in posting this is that others may read it and have a similar result.
Whatup9796 andrew66395
Posted
Paintballdob Whatup9796
Posted
I know where you are coming from. I will pray for you.
The pain is SO severe but the person appears normal. It is not in your head; the pain is real.
I am sorry your wife is not understanding, as this probably makes it worse.
The only things that seemed to help me is antibiotics (multiple courses) and Elavil (amitriptyline). Also, avoiding alcohol as much as possible.
I wish you luck. BTW, I am a doctor--we were never taught much about CPPS. I never even heard about it until I got it. It is the worse pain I could have imagined!!
Good luck to you my friend. Stay strong for your son.
Craig_W. john02
Posted
You mentioned a urologist ruled out prostate cancer. How did he rule it out? Did he perform a biopsy? Also, did you have an elevated PSA level?
Thanks!
-Craig
mohamed77139 john02
Posted
These are symptoms I am suffering from for about 5 years :
1-Urgent need to pee every 20 min
2-Difficulty in starting pee
3-The urine flow is hesitating and very weak
4-Lower back pain
5- Severe pain in the pelvic area
6-Pain in knees
7-Severe pain after ejaculation
8-Discomfort between testicles and anus
9-Sitting is not comfortable.
Can this be CPPS, if so what should I do?
Thanks in advance.
shak2340 mohamed77139
Posted
john02
Posted
All I can suggest from my own experience is that you ask your doctor to prescribe amitryptiline as 10mg tablets. It doesn't work for everyone but with this condition we will try anything!
It is important to start with a low dose, one tablet, taken at about 8 in the evening. At first it will make you sleepy, but persist because this effect gets less as you adjust. Take that dose daily for, say, two weeks. If it isn't easing the pain then step up the dose to two tablets, that is 20mg daily, also at about 8 in the evening. Carry on this process gradually increasing dose.
Amitryptiline is an anti-depressant originally prescribed for depression and given in high doses. In high doses it can be addictive, but not in doses up to about 50mg.
Obviously you should check with your doctor that this drug will not interact with any other medications or be unwise because of anything else in your medical history.
Good luck. I hope it works.
Paintballdob john02
Posted
Mohamed, there is hope as I had very similar symptoms and all my tests were "normal". If all diagnoses have been excluded for you, CPPS is most likely. It is, for lack of a better description, a very BRUTAL condition.
I truly wish you luck. I hope you can get some bormalcy back in your life.
Join this discussion or start a new one?
New discussion Reply